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A MyFibroTeam Member asked a question 💭
Willowick, OH

I was wondering if any of my fibro friends work...? I was just hired for my dream job and I'm seeking some advice for maintaining employment...

December 22, 2016
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Answer Summary

Members offered encouraging advice to someone starting their dream job as a nurse while managing fibromyalgia, with many sharing their own... Read more

Members offered encouraging advice to someone starting their dream job as a nurse while managing fibromyalgia, with many sharing their own experiences working in demanding roles like healthcare, retail, and childcare despite daily pain and fatigue. Several members emphasized practical strategies including listening to your body without guilt, prioritizing sleep and rest over household tasks, taking full lunch breaks to recharge, using heat wraps or topical creams for pain relief, and communicating openly with supervisors about limitations. A recurring theme was the importance of setting boundaries at work, moving regularly to manage stiffness, and finding small ways to pace yourself throughout the day so you can sustain employment long-term without triggering severe flares.

A MyFibroTeam Member

I'm a nurse too in the operating room that is a trauma center so it can get really busy. I started having more serious symptoms about 10 years ago and slowly decreased my hours over the years. I now work 4 eight hour shifts with no call. Some days are good and others are not but I find overall moving in best when you have fibro. I think for me a desk job would be more painful. I've learned to manage the stress over the years and take deep breaths often. I have Thermacare wraps and solan pas patches by the droves in my locker! You will find what works for you Madolyn. Congrats on your job!

December 23, 2016
A MyFibroTeam Member

I work 30 hours a week. I am lucky and my mom is my boss. She also has fibro so she understands when I have flare ups and I understand when she does. We help each other out the best we can. Also 1 other employee has fibro. We all understand. The ones who don't have it know it's real though and when we are having bad flare ups they do extra to help. Talk to your boss. More people have it than you think and more people are willing to help when you're hurting!

December 23, 2016
A MyFibroTeam Member

I was diagnosed when I was 45 years old and was able to keep up with my very busy desk job for 14 years. It was only when my job became unbearably stressful and I was working 50-60 hours per week that my flares became so severe I had to go out on disability. It has been 6 months now since I worked and I am still very sick. My advice to you is to be certain to listen to your body; when it tells you to slow down to get through a flare please slow down. In my experience this is not something you can just "power through" and not cause real problems later. Congrats on your dream job, I hope all the best for you.

December 22, 2016
A MyFibroTeam Member

Hi and Congrats! I still work full time but it is literally all I do. I go to work and go home and sit or lay and try not to do anything that will make the next day worse. I start work at 7am and by 9 or ten the pain is bad and I'm ready to leave. The fact that I can't leave when I hurt gives me anxiety and I usually make one or two trips a day to the bathroom to cry. However, my main areas of pain are my hand, wrists, elbows and back and shoulders and I have a desk job. I am hunched over a desk typing most of the time so it makes it really bad. Hopefully your new job will be flexible with you when necessary.

December 22, 2016
A MyFibroTeam Member

Money vent @A MyFibroTeam Member ?

December 29, 2016

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