You know, it's hard for them. My husband has done some research, and read everything I've given him. He's been there while I've had ups and total years-long crashes. I was a full time paralegal when we got married 15 years ago - now I'm totally disabled, and he has to do all of the housework and shopping. Worse, sex is so infrequent because I'm in pain, and totally exhausted. He understands, yet he needs attention too.

It might be good if she joined this group - or a group for families/caregivers - so she can see that you are not the only one with this "supposed" disease. I also find that trying to pay attention to my husband early in the day, before I get really bad, helps a great deal. God bless.

Not so long ago I would have said No, my partner didn't understand but she has done lots of research and come to some docs appointments with me recently so she gets it more. There are not so many arguments over it now, and there is also not the competition of who feels worse than who, which was becoming a problem, and that had start to feel like her way of saying I was a hypochondriac. Hopefully she doesn't feel that way anymore.

My husband is alright with my fibro he was there when I got told I have it and it was explained to him by my rheumatologist what it is and entrails. Does he understand not fully but I don't understand his eplipsy 100% either but we manage

In what way do you mean a competition Christie Jo?