For those of you that have Lupus and fibro please give your input if you have minute. I wSas diagnosed with Lupus several years ago. I had what I believe is/was skin Lupus? I went in to doc because from the knee down I had discoloration or a rash and I got it right after I went to the tanning bed. They did blood work and said I had Lupus and put me on plaquenil (spelling?). I did really well and it was like it was gone for a couple years. I started having trouble again. Went to different… read more
Answer Summary
Members shared their experiences navigating overlapping diagnoses of lupus and fibromyalgia, with many describing frustrating situations where... Read more
With plaquenil, make sure you get your eyes tested, it can cause color blindness. A nurse told me this, the first color to lose is red. I took that drug with methotrexate for 6 yrs, had to get my eyes tested every 6 mo.
I had thesamehappeen to me.. my firstdoc that was fantastic told Mr due to blood count that I had lupus and CDs... put me on meds... unfortunately a couple of years later he was ina acc and couldn't practice any more.. had didddifferent doc and dasaid it was fibromyalgia... I said where did the lupus go... they had no answer but said they don't see that only fibro....take care
I have been diagnosed with fibro for years but my cousin has lupus when I asked my pain management dr about this he told me that with the symptoms I have my diagnosis of fibro is what he would have given to me if I was a new patient of his. He is recognized as one of the top Dr's in this area and in his field.
Plaquenil causes Macular Degeneration/blindness
My mum had lupus what she was told all her life unfortunately few weeks before she died they told her she didnt have it anymore