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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Nashville, TN

For those of you that have Lupus and fibro please give your input if you have minute. I wSas diagnosed with Lupus several years ago. I had what I believe is/was skin Lupus? I went in to doc because from the knee down I had discoloration or a rash and I got it right after I went to the tanning bed. They did blood work and said I had Lupus and put me on plaquenil (spelling?). I did really well and it was like it was gone for a couple years. I started having trouble again. Went to different… read more

November 26, 2016
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Answer Summary

Members shared their experiences navigating overlapping diagnoses of lupus and fibromyalgia, with many describing frustrating situations where... Read more

Members shared their experiences navigating overlapping diagnoses of lupus and fibromyalgia, with many describing frustrating situations where one diagnosis replaced the other without clear explanation or where doctors seemed uncertain about what was truly causing their symptoms. Several members emphasized that there are no definitive blood tests for fibromyalgia and that lupus blood work can show fluctuating results, leading some to question whether they had been misdiagnosed all along or whether both conditions can coexist. A recurring theme was the importance of advocating for thorough testing, getting regular eye exams when taking Plaquenil, and recognizing that even experienced doctors sometimes rely on educated guesses rather than absolute certainty.

A MyFibroTeam Member

With plaquenil, make sure you get your eyes tested, it can cause color blindness. A nurse told me this, the first color to lose is red. I took that drug with methotrexate for 6 yrs, had to get my eyes tested every 6 mo.

November 27, 2016
A MyFibroTeam Member

I had thesamehappeen to me.. my firstdoc that was fantastic told Mr due to blood count that I had lupus and CDs... put me on meds... unfortunately a couple of years later he was ina acc and couldn't practice any more.. had didddifferent doc and dasaid it was fibromyalgia... I said where did the lupus go... they had no answer but said they don't see that only fibro....take care

November 27, 2016
A MyFibroTeam Member

I have been diagnosed with fibro for years but my cousin has lupus when I asked my pain management dr about this he told me that with the symptoms I have my diagnosis of fibro is what he would have given to me if I was a new patient of his. He is recognized as one of the top Dr's in this area and in his field.

November 28, 2016
A MyFibroTeam Member

Plaquenil causes Macular Degeneration/blindness

November 27, 2016
A MyFibroTeam Member

My mum had lupus what she was told all her life unfortunately few weeks before she died they told her she didnt have it anymore

November 27, 2016

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