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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Any One Else Also Have Lymes Disease?

Does Any One Else Also Have Lymes Disease?

I was tested for lymes disease using the standard test and a few of the other forms of lymes tests that are out there and they found I had lymes not using the standard but an alternative form of test.

almost 6 years ago
A MyFibroTeam Member

Do you know what test they used to diagnose you as positive? I am in NY and can't findo anywhere to be tested other than the test that is 75 % wrong. Also, someone told,me even if one,bar is positive you have Lyme. It's like,being sort of pregnant. You either are or are not.

almost 6 years ago
A MyFibroTeam Member

Dr tested me for Lyme's and I tested positive for 3 bands. Was put on antibiotics for a full month and then went to see a specialist and he said I didn't have Lyme's. I still think all my issues stemmed from that. There is a lot of controversy with a Lyme's diagnosis. Lyme's mimics a lot of auto immune diseases

almost 6 years ago
A MyFibroTeam Member

You should be tested for Lupus and Lymes, plus many more. Right now I am being tested for Polymyalgia rheumatica which is a mouthful. I was told that if I have this I will have to be on steroids for two years which will be a whole new set of problems. Talk with your PCP and your rheumatologist about what test you should have to eliminate any other diseases that you could have with the symptoms you have. Hugs.

almost 6 years ago
A MyFibroTeam Member

It is possible to still have Lupus and have negative tests. In a two year span I had two positive ANA tests. When I finally got in with the Rheumatologist, he did another ANA and it came back negative. He insists I don't have Lupus. However, when the test was done, I was past my flareup. I'm now at what I consider my baseline. During my flareup, which started in very late February, early March of this year, I was really bad. It took all my energy just to drive to work (45 minutes each way if traffic is good). Have an ANA done during a flareup and see what the result will be. There are other tests as well the doctor can look at also. In all it took six months before I received my diagnosis of Fibro. Tuesday is my third visit with Dr. Stocker. Fingers crossed he give me something else because Meloxicam isn't doing anything.

almost 6 years ago
A MyFibroTeam Member

I have only saw a Rheumatologist once, and that was.when he diagnosed me with Fibro.

almost 6 years ago

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