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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Huntington Beach, CA
October 23, 2016
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Answer Summary

Members with lung problems related to autoimmune conditions like lupus, Sjogrens, fibromyalgia, and psoriatic arthritis strongly recommended... Read more

Members with lung problems related to autoimmune conditions like lupus, Sjogrens, fibromyalgia, and psoriatic arthritis strongly recommended seeing a pulmonologist for proper diagnosis and treatment. Several members described the testing process, starting with spirometry to measure lung volume and breathing capacity, followed by plethysmography (a non-invasive test in a clear box with controlled pressure) if more detailed information is needed, and occasionally a bronchoscopy to visually examine the airways. A recurring theme was that these tests helped diagnose conditions like severe asthma, restrictive lung disease, COPD, and emphysema, with many members now managing their lung health through specialists and treatments tailored to their specific diagnoses.

A MyFibroTeam Member

They test your lungs with spirometry, which is blowing into a machine, and if you need future testing you will have a plethmography, a clear box where you blow again into a box, all of it is non invasive, you can have a bronchoscope which is a look down in your lungs through a scope run thru your nose into your lungs. Hope this helps!!!

October 30, 2016
A MyFibroTeam Member

The first test is spirometry which test your lung volume and your ability to hold air. If that test shows real issues they will do a phethmography. It is a clear box you get in and the barometric pressure is perfect, and they do the test again. It gives the pulmonologist lost of information about your lungs. I have had both, and discovered I had severe asthma, and restrictive lung disease from the Lupus and Sjogrens. A non-invasive test. Hope this helps!!!

October 24, 2016
A MyFibroTeam Member

I do have a spot on my lungs, thankfully doesn't seem to have developed into anything else.

Tests have shown good air supply, although I have an inhaler for seasonal asthma...

October 30, 2016
A MyFibroTeam Member

I have severe lung issues and it was diagnosed by Spirometry first and if it is out of range, there is Pethmography, a clear box that you sit in and it has perfect barometric pressure and they test you blowing like the spirometer, then they did a bronchoscope which is a camera, run down your nose into your lungs to look around at your bronchia. Good luck and I hope you find a good pulmonologist to provide your care.

October 29, 2016
A MyFibroTeam Member

I, have fibromyalgia in my ribs so yes it hurts & I have to wear a sports bar instead of a regular bra it doesn't hurt as much

October 29, 2016

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