Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Just came home from meeting my new Neurologist and he said we have exhausted all the meds but this Zonegran and Botox injections. He is having his staff see if my insurance will pay for it, since I avg 5/week. Just wanted to know if anyone else has tried them and would like to hear about their experience..

October 20, 2016
 · 
Be the first to react

Answer Summary

Members shared varied experiences with Botox injections for severe fibromyalgia-related migraines, with some calling it a miracle treatment... Read more

Members shared varied experiences with Botox injections for severe fibromyalgia-related migraines, with some calling it a miracle treatment that significantly reduced their headaches while others reported it made their migraines worse or feared potential complications like swallowing difficulties. Several members described alternative approaches that worked for them, including magnesium supplements (250mg daily), discovering medication triggers like Gabapentin, occipital nerve injections, Zonegran for seizure-related migraines, and combinations of pain relievers with ice packs and rest in dark rooms. A recurring theme was the deeply personal nature of migraine treatment, with members emphasizing that everyone responds differently to interventions and encouraging the original poster to gather information, weigh risks carefully given their complex medical history, and remember that trying something new is worth the possibility of relief.

A MyFibroTeam Member

Boy do I . I have a migraine everyday ranging from a 5-7 daily pain. I have tried Botox years ago and it made them worse. But everyone is different. I've heard good things about it. Everything is worth a try, it could be a success for you. Nothing beats a failure but a try. I'll be πŸ™πŸΎπŸ™πŸΎπŸ™πŸΎFor you. Let us know how it goes.

October 21, 2016
A MyFibroTeam Member

I found out by accident that what I take for restless legs is also used for migraine prevention. My headaches are no where near as servere as they were and less frequent

October 21, 2016
A MyFibroTeam Member

I have taken Zonegran for 8 yrs for seisures It has worked really well for that, unless I get really stressed and then I still have them. I also took the Botox shots for headaches and it was a miracle. The only thing I will advise you to be careful of is getting any around the neck region. My throat began to get where it was hard to swallow. You might want to watch that really close.

October 20, 2016
A MyFibroTeam Member

I have anywhere from 15 to 20 days a month. Major migraines about 10-12. But I have had a stroke and something like 20-25% of my cerebellum died so a botox injection is scary for me. I'm the one in a million that things go wrong, so getting a shot in the neck and and praying I don't have a reaction is not a chance I'm willing to take. I've tried every migraine med on the market none worked. Pain meds don't work, I've tried to go in to the ER to get a big girl pain med and they gave me tramadol it sped me up like I had to keep moving real fast, so they gave me benadryl to slow me down, it made my BP go up.. So yeah I'd rather deal with the pain in a dark room with the resolution on the TV and the comp down until it goes away!
I wish you luck in finding a way

October 20, 2016
A MyFibroTeam Member

I was getting loads of migraines it turned out to be Gabapentine

October 20, 2016

Related Questions

View All
A MyFibroTeam Member asked a question πŸ’­
Reading, PA

A MyFibroTeam Member asked a question πŸ’­
Lancaster, PA

A MyFibroTeam Member asked a question πŸ’­
Thunder Bay, ON