I often explain my symptoms to many people and often get it brushed off with "it's not that bad" or "its in your head" or even "your playing on it"! Like I use Fibro as an excuse to stay in bed all day. I can assure you that it is not my desire to spend the day or days on end in bed feeling rubbish...I even find it difficult explaining to my partner at times and he openly admits that he finds it difficult to believe at times
What is the best way to educate non sufferers and your family around… read more
My husband is that exact same way. I tried to educate him on the disease by printing out some really good basic information on fibro, he said he read it, I don't think he ever did because had he read it; he would understand that when I say I hurt don't hug me, I MEAN IT!!! or when I go to bed at 8:00 it is because I am dog ass tired. Why can't our loved ones at least try to educate themselves and understand what we are going through??????? They would if we had cancer.
Has your husband gone to the Dr. With you? You can ask questions that you want your husband to hear from the Dr. It makes it real more coming from the Dr. Instead of you. I would give him articles and then talk about it so he has to read. You can start by saying there is a few things that I need you to understand. I hope you can find a way.
Know this feeling far too well x
I stuggle for people to understand, they don't notice when I'm struggling in pain or can barely move then when I have a good day everyone's like oh you look fine today and isn't it weird and I'm sick of them all saying things like that! I don't choose to be this exhausted and feel nautious all the time!
He said my dr. appts. are useless, why would he take the time to go with me. Like I said before, maybe if it were cancer he would go because he knows about cancer, but he knows nothing about fibro and still won't try to educate himself on it. I use to weigh let's say right around 105-110lbs. I now weigh 87lbs. because of all the stress in my life with my mother being in the nursing home and I know she is never coming out and that is killing me, tearing at my heart each day, does he care, if he does, he doesn't show it; when I get home from the nursing home after having worked a full day, all he wants to know is where is his dinner?? Last night I fixed dinner, and all I got was "This is a interesting combination" I proceeded to go to the bedroom and after he and my son got their plates, I then got myself a plate, went back to my room and ate by myself; then went and cleaned up the kitchen my myself, put a load of clothes in the wash machine and took one of out the dryer and folded and put them away. He comes to bed and wants to cuddle and then well you get the picture, I just told him I was hurting and too tired and he got pissed off and rolled over and pouted, Sometimes I just feel like I exist in my own home, I am there to cook, clean and please my man. Otherwise, I don't exist, I am not needed and it hurts, sure he and my son act like they are listening to my stories but they aren't, I can tell. Use to I could at least go over to my mother's who lived in a mother-in-law cabin/house on our property and do thing with her and now I don't even have that. Thanksgiving this year, I just don't think I can do it, there are to many divides in my family that need to be fixed and I don't have the energy to fix them so I will not attend or be making thanksgiving year until my siblings can fix their issues!!!!