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ANA Markers
A MyFibroTeam Member asked a question šŸ’­

Hey, everyone. I was diagnosed with Fibromyaliga a year ago. I was only taken seriously when my ANA marker came back as 1:160. My doctor then did a few more tests and ruled out Lupus. A year later and my neurologist wants to revisit my blood work. She believes there is something more going on. She also has me of of all my medications because she wants to find a medication that treats the syndrome rather than the symptoms. My only issue is that my doctors keeping sending me to other people. It'sā€¦ read more

posted October 15, 2016
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A MyFibroTeam Member

Like Andrea, I was also told by a doc that she was out of answers for me. I do alot of research and ask a lot of questions but I don't demand tests cause they cost so much! I have gotten to the point that if I am able to tolerate my symptoms with meds and self help in my diet and supplements, I just go with the flow. Not that I'm completely hopeless, but pretty darn close some days.

posted October 17, 2016
A MyFibroTeam Member

I had the same problem when I was diagnosed in 2004...every doctor would pass me to the next doctor and then a specialist would tell my family doctor to prescribe the medications. It was quite the experience. Finally, I am managing ok for now. Things change over the years and you will need different treatments as our bodies change. Good Luch ANA and stay positive and strong.

posted October 18, 2016
A MyFibroTeam Member

I had the same thing happen and just today had all the blood work to hopefully rule out Lupus. My ANA was positive a low positive like you. The rhumatologist won't see me again after this and wanted no follow up regarding the fibromyalgia. She just said find the triggers and eliminate them. I have found some triggers and have been working to eliminate them from my life. I landed at the psychiatrist because no one else will give me any medicine to help my fibromyalgia and of course because my life has changed so much I have some depression and anxiety. Anyways I just wanted to say that when I landed at the psychiatrist she said that I have just been passed around from specialists and now she will help me get the physiotherapy and the right medications. I do think it is rather odd that the psychiatrist has to be the one to send me to physiotherapy and is the only one who will make changes to my medications. Maybe it depends where you are and what their beliefs are. I live in Finland and they don't recognize fibromyalgia as a disability of any sort. So I guess they sent me to the psychiatrist because it must be all in my head. What a fucking joke.

posted September 11, 2017
A MyFibroTeam Member

We have one specialist in Utah that has nearly a 4 year waiting list. She does free seminars for both doctors and patiens because she just cant help everyone. I also understand she is training Doctors. They still suggest going to a Psychiatrist here.

posted October 25, 2016
A MyFibroTeam Member

I was going to doctor to doctor and I said the heck with this I don't and didn't have the time or money to go through this. I found one doctor which she is not a doctor she is a nurse practitioner but she is awesome she listens, understands, and if she does not know something she finds out. You really just have to find someone you can rely on and trust. She still want all those test but she is always honest and when I went to all those other doctors they passed me on to other doctors.

posted October 19, 2016

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