I have been dealing with fibromyalgia pain for awhile now ...but here recently I have also started having stomach pains with diarrhea and nausea .....done some reading on fibromyalgia but can't find answer on how to handle this problem ......also is it normal to isolate ur self from everything and stop planning things only going day by day and hope u have at least 1 good out of the week.......thank you .....also dealing with sweating bullets and sometimes just sitting don't have to… read more
Unfortunately it is normal but go to doctor to make sure it isn't something else before you say oh another fibromyalgia symptom. The best thing I found for nausea is peppermint tea it will help settle your tummy. Sweating bullets I have done that too. But like I said check with doctor it could be something else thyroid or hormone related. I find myself isolating too. I have issues with light and noise as well. This morning I am up early after having little sleep. I am meeting a friend 45 minutes away for coffee. I am tired of being lonely and not having friends around. Fortunately this friend understands who I am and what this disease has done to me. I take supplements and try to stay as stress free as possible. Music helps.
Sleep deprivation is one of my symptoms, the sweats are awful. Bladder and I.B.S. daily.
Very normal when I try a little house work I just can't do it cos I sweat and I get the shakes through exhaustion just by trying it's an awful thing and it makes me feel useless even though I know I can't help it hope this is of some reassurance for you xx
I'm not sure about the GI stuff. I do understand not wanting to schedule anything. I've missed more family and friend visits/gatherings. I've been accused of not wanting to be wth family. After nearly 30 years some of my family sort of understand something. With my mom it's 'I hurt my back.' She understands that.
I don't have a bucket list. If I did it would be filled with the same thing, I hope to sleep well, have a good day and not miss out on anything that day. That's all . These things would make me immensely so happy that I don't need anything else.
One thing that bothers me is that you are isolating yourself. I've done it and it's not good for your emotional health. I've had 3 separate bouts with depression and isolation creeps in. Before I know it I only leave the house if I absolutely have to. A couple of times eating only food I had and only going out when I run out of essentials.
I've never had many friends, just a couple to hang onto in high school, nursing school and in my life. Very close with co-workers but not out of work. I have a couple of good friends where I moved from last year. My best friend and I try to Skype each week barring things life throughs at us. We keep up on each other's sewing, quilting, crochet projects. Then we gab for 60-90 minutes about everything. Her daughter finally was able to move near them and I had moved to be close to my daughter initially because of health issues. I have some budding cardiac problems that will cause me problems hopefully much later, but I am 66 with lots of cardiovascular history in my family.
I digress. I tend to be the queen of TMI.
I guess what I would encourage you is see a counselor (that got me out of the house once a week for awhile.) Just because isolation is on of the symptoms of depression. You don't want to go there. It is a big black hole that you can't see out of and you can't imagine getting better. It kind of creeps up on you and has you in it's clutches before you or someone else picks up on the symptoms.
I hope this hasn't been too personal and intrusive. Let me know how you do. I don't know who you are or I'd put you on my teams.. Gentle hugs.
Kind of funny you mentioned feeling isolated. I was just telling my mom on the phone earlier that I dread going anywhere (had a doc apt yesterday) because it causes me pain and exhaustion. I live alone. I don't plan anything except doc appointments and groceries once a month. I have no social life at all but the way I feel most every day, it doesn't bother me.
I also have IBS and as of yesterday I was told overactive bladder and urge incontinence. I sweat awful, just sitting in the recliner not doing anything. I have a towel by me to mop myself up. The weather is getting cooler but I'm still sweating away! Yesterday in the waiting room at the doc's I was having to fan myself with a magazine and the back of my hair was soaked. Hope this helps. Happy Birthday! Best wishes