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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Liberty, MO

I am worried my pain is worse than ever so bad scared its something worse than fibro.

September 26, 2016
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Answer Summary

Members responded to someone worried their worsening pain might signal something beyond fibromyalgia, with the most common advice being to... Read more

Members responded to someone worried their worsening pain might signal something beyond fibromyalgia, with the most common advice being to consult a rheumatologist for accurate diagnosis and to closely monitor how their body feels to differentiate fibro pain from other conditions. Several members mentioned overlapping syndromes like Sjogren's and polymyalgia, with practical suggestions including blood testing, corticosteroid injections, and recognizing weather-related flares that worsen pain and stiffness. A recurring theme was the debilitating nature of neck pain, which many described as feeling too heavy to hold up, sometimes accompanied by a swishing sensation or feeling sick.

A MyFibroTeam Member

Oh that neck pain is just the worst, sometimes I feel like my head is too heavy for my neck to hold it up. It also makes me feel sick and sometimes it feels like I have fluid swishing there especially when I turn over form one side to another.

September 29, 2016
A MyFibroTeam Member

Yes I have trouble with the weather it can really cause a lot of pain and stiffness in my neck. It really makes me feel sick sometimes.

September 29, 2016
A MyFibroTeam Member

Just the weather

September 28, 2016
A MyFibroTeam Member

Cortisone

September 28, 2016
A MyFibroTeam Member

My sister's sister-in-law has that and it only responds to corticosteroids injections

September 28, 2016

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