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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 19, 2016
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Answer Summary

Members shared how fibromyalgia affects their ability to regulate temperature, with many experiencing unbearable pain, excessive sweating,... Read more

Members shared how fibromyalgia affects their ability to regulate temperature, with many experiencing unbearable pain, excessive sweating, swelling, and digestive issues in both heat and cold. Several members described specific heat-related symptoms including prickly heat rashes, feeling like their skin is on fire, IBS flare-ups, and swelling in hands and feet, with some finding slight relief by sitting in shade or feeling grass on their feet. A recurring theme was the frustration of being unable to find comfort in any season, as both extreme cold and heat trigger severe pain and dysfunction that significantly impacts daily life.

A MyFibroTeam Member

Ohhh I don't like the heat at all Hun, I can not function at all, it's like my theometer is turned up higher than anyone else.. Xxx

August 20, 2016
A MyFibroTeam Member

I used to only get bad in the winter and a few years before I was diagnosed with Fibro, my doctor asked if I was a seasonal depressant! I said no and I knew that the pain was fierce in the winter, which made me depressed from all the pain. This summer is the worst I've ever been and I can't believe I'm going to be like this all year round now!! It's morning right now and I am usually really bad for the first hour after I get up so I guess that could be why most of my answers are so negative right now!! Hope you have a good day!

August 20, 2016
A MyFibroTeam Member

I have read that ppl with fibro can't regulate temperature right.
This past winter I was so cold I chould hardly stand outside without being in pain. I couldn't wait until summer. Well little did I know the heat was as bad or worse then the cold. My feet n hands swell. I feel like there's fire on my skin n I sweat uncontrollably.
We can thank our friend fibro.
๐Ÿ˜Š hope u have a good day

August 20, 2016
A MyFibroTeam Member

Yes, the heat is terrible. Even in AC I sweat horrifically. The pain is unbearable. My stomach gurgles and I just have IBS. I eithe am constipated or uncontrollable. Stomach pain.
In the winter I crave light. I must have light or I feel caged

August 20, 2016
A MyFibroTeam Member

Yes I experience the same thing. Also, I've noticed the higher the humidity, the more I swell and my skin becomes very sore and sensitive due to the swelling.

August 20, 2016

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