After the so called chronic illness diagnosis "honeymoon" phase has passed, do any of you find that with time your family seems to have forgotten your sick?
The once asked question how are you feeling, the can I do something for you, let me help you, the realization that you are even sick at all and getting worse seems to have completely been forgotten?
You then are fighting your invisible illness alone? As a women things around the home do not… read more
Yes they know I have had this illness for years but they often forget my limitations and that I may feel lousy everyday.
Yes to absolutely everything you just said. I think you have described all of this exactly right.
I am really struggling at the moment with feeling particularly alone and my illness forgotten by my partner. She always seems surprised when I have trouble moving or sleeping or thinking straight, or if I'm really tired for no apparent reason even though it happens all the time.
She is not the sort of person to ask if I'm feeling ok, I'm the nurturing empathetic one out of the two of us. But she appears to have forgotten about the Fibro, even though I tell her what the docs say when I've been to see them. We spoke about it once and she said that if I don't tell her WHEN I'm in pain then she doesn't know, so I explained that I am ALWAYS in pain and that if I kept telling her about it, it would be all we ever talked about because it never goes away and is getting worse. Really frustrating because she believes that she is fully educated on the subject of FMS, yet she doesn't understand this fundamental detail of the condition, and she doesn't seem to believe me when I try to explain what it is like, she only believes what she can read on Google. I think she thinks it's all made up. She didn't see me at my worst just before I was diagnosed so this is part of the problem, and since then I have adopted a lot of different things to improve my symptoms, Ive been pretty proactive in that way, but she has not had to deal with me in a really bad state yet and I worry about how she will respond if/when it happens. She's never had an illness in her life so she doesnt know what it's like to have to live your life with this extra thing to always contend with. Invisible, out of sight, & out of mind!
Sorry, what a rant! I guess I needed to vent.....☹️
Debbie Lou good evening 😆👍So sorry you don't have that support from your ole man 😨😨😨😨have you ask him to google it n read about it? once my ole man did,he really helps me a lot n understands when I'm having flare ups!!!! again sooo sorry but you can always talk or vent to all of us !!!!! sending you gentle hugs n wishing you less painful days n nights too 🌹🍃🌺🌿👍✌❤
My husband is a truck driver, so he is only home a few days a month. Hubby doesn't really understand the invisible disease that I am battling. Our relationship changed about ten years back. My kids seam to forget that mom needs down time to recharge. So yes I do feel like I am battle this painful illness alone. Take care.
awesome Libby 👍😆It really helps when your partner understands 🌞😎 this is a great site since I've been on it I don't go off on my ole man Rick or my family, we can vent here n everyone knows the feeling right 😨😨😨 gotta,hit the sheets 4:30am comes early lol sending you gentle hugs n wishing you less painful days n nights 🌹🍃🌺🌿✌❤