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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Success With Neurologist?

Success With Neurologist?

Have any of you had success with a Neurologist? Much research points to our Central Nervous & "sub category" systems as playing a huge role in FMS, explaining how pain processing, immune system, digestive tract, multiple organs, etc. can be compromised & NOT work properly
Has the Neurologist done specific testing? Has she/he set you on a path that your GP or Rheumatologists have not?

The Rheumatologist in my medical group doesn't treat FMS, as it's no longer considered an autoimmune… read more

A MyFibroTeam Member said:

Some of today's neurologist appointment juicy bits:

Though I feel nerve activities in my feet I just learned the nerve studies show normal because those tests show peripheral nerve disorder whereas I have a CNS disorder.

Though I have joint pains I show normal blood work. She explained it can take around 5 years to show. Though it seems I've had this longer than. Idk.

We talked about mold exacerbating or triggering symptoms and illness.

Lumbar puncture is a diagnostic tool I will have ASAP. Rule out Lyme Disease or ?

Maybe this is helpful to you.

posted about 6 years ago
A MyFibroTeam Member said:

This is a very interesting post. I'm being investigated for Fibromyalgia & I get all of the normal stuff that we all have to suffer from day to day but one major thing I get are non-epileptic seizures, I've had 6 this year.
I'm now waiting for an appointment to come through to see a Neurologist for a true diagnosis of non-epileptic seizures & to be, at last, medicated & at last get some sense of normality back in my life.
I know that as yet, there isn't a medication for Fibromyalgia but if my seizures can be controlled then I can deal with the aches & pains of Fibromyalgia.
Wishing my best to everyone & I'd like to say that this site is brilliant for help, advice & friendship. X

posted about 6 years ago
A MyFibroTeam Member said:

I feel like a zombie at the moment for a week now I haven't been like this for years I think I have to see my doctor genteel hugs xx

posted about 6 years ago
A MyFibroTeam Member said:

My neuro who specializes in spine did xrays and nerve conduction study and referred me to a brain neuro for MRI.
I am still figuring out how it works, the muscles and nerves.
Physical therapy was prescribed to smooth the muscles and cool down the spine facets that are sort of pinching the nerves.
I'm walking a bit, same with yoga and other energy movements, plus dance and complementary therapies of massage and acupuncture. (I like alternative and ancient "new age" healing as well.)

edited, originally posted about 6 years ago
A MyFibroTeam Member said:

The first neurologist I saw in 2002 prescribed neurontin and it didn't help at all. I just zombied and puffed out and felt like a narcoleptic dropping anywhere and sleeping, and the nerve issue continuing all the while.

posted about 6 years ago
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