Most people with Fibro in England really have to fight to get any real support. The british Goverment it seems had forgetten about us. Im wondering if i was to start a campaign to raise awareness of fm, and to finally get this goverment and others worldwide to realise we need just how much help and support we need, how much backing would i get ??
They do seem to be acknowledging the illness more but I do think we get ignored and it is a very disabling condition, I only get standard disability when some days I can hardly walk! Been in bed for 3 days with swollen ribs and it's so painful! I would definitely support you x
Hi @A MyFibroTeam Member. Its storys like yours ( and others) that give me heart when i think about this campaign. Its heartbreak, what we have to deal with and how we are treated xx
Ladies, the louder you yell, the more you will be heard. The more you are heard, the more who will join you. No one will speak up for you but you.
YOU can start a movement. YOU are strong ! Have courage, my friends! It only takes one voice to reach millions.
I've had fm for a number of years. It was the pain management clinic who diagnosed me, they were very helpful and friendly a so understanding the pain etc, but it's not just the pain we have to go through, it's also the huge amount of side effects that come with the fibro. I don't think that there is enough information regarding fm, so yes Samantha I would support you, the more support we can get out to the public sector the better.
We do get ignored by medics that dont understand fm, im at the point where due to an extra problem with my spine, im slowly losing the use of my arms and my legs. I got turned down for pip so i get no help at all. @A MyFibroTeam Member, thank you for your support, even if i can only change 1 persons mind about fm then it will be a start x
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