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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Fibro Support

A MyFibroTeam Member asked a question 💭
Wellingborough, UK

Most people with Fibro in England really have to fight to get any real support. The british Goverment it seems had forgetten about us. Im wondering if i was to start a campaign to raise awareness of fm, and to finally get this goverment and others worldwide to realise we need just how much help and support we need, how much backing would i get ??

July 7, 2016
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Answer Summary

Members rallied around the idea of starting a campaign to raise awareness of fibromyalgia in England, sharing stories of being dismissed by... Read more

Members rallied around the idea of starting a campaign to raise awareness of fibromyalgia in England, sharing stories of being dismissed by doctors, denied disability benefits despite severe symptoms, and left to manage a debilitating condition with little to no financial or medical support. Several members described the struggle of working through exhaustion and pain because they cannot afford to reduce hours, being turned down for PIP (Personal Independence Payment) despite specialist diagnoses, and facing doctors who either blame everything on fibro or don't understand the condition at all. A recurring theme was the deep frustration of feeling invisible and abandoned by a system that should help, paired with fierce determination to speak up, demand recognition, and fight for better treatment and support for all fibromyalgia sufferers.

A MyFibroTeam Member

They do seem to be acknowledging the illness more but I do think we get ignored and it is a very disabling condition, I only get standard disability when some days I can hardly walk! Been in bed for 3 days with swollen ribs and it's so painful! I would definitely support you x

July 7, 2016
A MyFibroTeam Member

Hi @A MyFibroTeam Member. Its storys like yours ( and others) that give me heart when i think about this campaign. Its heartbreak, what we have to deal with and how we are treated xx

July 13, 2016
A MyFibroTeam Member

Ladies, the louder you yell, the more you will be heard. The more you are heard, the more who will join you. No one will speak up for you but you.
YOU can start a movement. YOU are strong ! Have courage, my friends! It only takes one voice to reach millions.

July 7, 2016
A MyFibroTeam Member

I've had fm for a number of years. It was the pain management clinic who diagnosed me, they were very helpful and friendly a so understanding the pain etc, but it's not just the pain we have to go through, it's also the huge amount of side effects that come with the fibro. I don't think that there is enough information regarding fm, so yes Samantha I would support you, the more support we can get out to the public sector the better.

July 7, 2016
A MyFibroTeam Member

We do get ignored by medics that dont understand fm, im at the point where due to an extra problem with my spine, im slowly losing the use of my arms and my legs. I got turned down for pip so i get no help at all. @A MyFibroTeam Member, thank you for your support, even if i can only change 1 persons mind about fm then it will be a start x

July 7, 2016

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