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Top 10 Search Results for "fibromyalgia awareness"

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Fibromyalgia Awareness Day
A MyFibroTeam Member asked a question 💭

May 12th is Fibromyalgia Awareness Day, but does anyone here do anything special on this day, like wearing a FM awareness T-shirt and walk around the city, passing brochures about FM on the street, donate money to a FM research institution, etc?

I would like some inspiration. Thank you!

A MyFibroTeam Member

Yeah, I can't lay on wrinkles. Heating pads are tough too.

How Difficult Can Fibromyalgia Get?
A MyFibroTeam Member asked a question 💭

The pain and dizziness, the memory laps, the cognitive problems, the depression, the headaches. There is not a part of my body that doesn’t feel affected. Is this normal?

A MyFibroTeam Member

Unfortunately yes it is normal. I’m sorry your in that place to. I use 50+% thc marijuana and a medication called Nabilone 0.25mg helps control the pain fairly well

Fibro Shops/charity
A MyFibroTeam Member asked a question 💭

Does anyone no of any charity shops,, specifically for fibro research? I would love to open up a charity shop, for this.Any ideas?

A MyFibroTeam Member

@A MyFibroTeam Member.Awh thanks,hun Its been on my mind for a, long tme, thinking about it,, iam a deep thinker though..&its great to able to share our thoughts on here as we are all in the same… read more

Would Someone Please Explain This, Is Fibro Autoimmune Or Not?
A MyFibroTeam Member asked a question 💭

I found a question and answer on Google that just doesn't make sense to me. First I read that it may be different in different people,, meaning (?} that it could be autoimmune. Then it says Fibro is not autoimmune, which I thought it is. So, here's Google's answer.

Is fibromyalgia autoimmune or neurological?

They may be different in different people. Current research suggests involvement of the nervous system, particularly the central nervous system (brain and spinal cord). Fibromyalgia is… read more

A MyFibroTeam Member

From what I understand it is not autoimmune. It is neurological and muscular. But, I am no expert.

Did Anyone Know That We Have A Fibromyalgia Awareness Day
A MyFibroTeam Member asked a question 💭

May 12 Is fibromyalgia awareness day. Did anyone hear of this because I wasn't aware that we had one. I read it just started a year ago. Anyway, our theme color is purple which I can get into. I wear a lot of burgundy but I can do purple. Kind of like the mysterious bruises we get occasionally. Here's to us as a team and solidarity!! Here are all the color purple emojis on my phone… read more

A MyFibroTeam Member

I will definitely mention it to the doctors.

Can Fibromyalgia Be Passed Down To Kids?
A MyFibroTeam Member asked a question 💭

My husband and I are starting the IVF process and I want to know if I can pass fibromyalgia on to my kids? and if I do become pregnant will my fibromyalgia get worse?

A MyFibroTeam Member

I agree, find another rheumatologist! They’re the ones who know all about this disease. Are you sure he’s not an MD? ❣️

Has Anyone Tried The Lightning Process?
A MyFibroTeam Member asked a question 💭

For people who haven't heard of the Lightning Process, it's basically a 3-day neuro-physiological training programme based on self-coaching. It's kind of controversial with both good and bad things about it online. What they claim is that, sufferers of chronic syndromes like CFS or fibromyalgia are stuck in a nervous system dysregulation, which causes the physical emergency response (flight or fight) that compromise body's systems and create the symptoms. By using neuroplasticity (re-wiring… read more

A MyFibroTeam Member

Link to fibromyalgia progression study below, discussion part talks about that some patient who met the diagnostic criteria for fibro at the baseline 2 years later they did not

"patient-reported… read more

Visual Troubles
A MyFibroTeam Member asked a question 💭

Do you suffer from visual troubles? I experience slightly blurred vision, difficulties in accomodation and above all impression of eyes hopping from word to word when reading instead of gliding as usually. Since combined with very tired eyes and feeling exhausted. Is this common in fibromyalgia?

A MyFibroTeam Member

Did you get the double vision too? I hate this symptom with a passion, but can self correct my focus quickly.

Is There Anything Special Happening May 12, International Fibromyalgia Awareness Day?
A MyFibroTeam Member asked a question 💭

Does anyone know of anything happening online tomorrow May 12?

A MyFibroTeam Member

Im sorry i missed it!

Does Anyone Know How We Can Start A Fundraiser For Awareness Of Fibromyalgia So The Sciencetist Will Research For A Cure?
A MyFibroTeam Member asked a question 💭
A MyFibroTeam Member

the people that make lyrica are doing a bang up job of that already. makes me soooo happy to know that those who called me hypochondriac are getting a lesson.