Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I remember after an operation maybe about one month after I had a very high fever and pain... after that My pain got worse and worse...

May 18, 2016
 · 
Reactions

Answer Summary

Members shared powerful memories of when fibromyalgia first emerged in their lives, with many describing specific triggering events such as... Read more

Members shared powerful memories of when fibromyalgia first emerged in their lives, with many describing specific triggering events such as surgeries, infections, car accidents, childbirths, or the profound grief of losing loved ones, while others recalled experiencing unexplained pain and exhaustion for years before finally receiving a diagnosis. Several members identified major life stressors and traumas as tipping points that brought dormant symptoms into full force, including caring for ill parents, workplace stress, childhood abuse, and multiple bereavements within short periods, with many noting that their pain became unmanageable when the body could no longer recover from accumulated stress. A recurring theme was the long and frustrating journey to diagnosis, often involving doctors who dismissed their symptoms as psychological or denied fibromyalgia existed, leaving members to advocate fiercely for themselves until they found providers who understood and validated their experiences.

A MyFibroTeam Member

The first time Fibro struck was after the birth of my son 53 years ago. Of course, no one knew what I was suffering from. I thought I had some sort of mental issue. Some of what I experienced had to be post natal depression but that didn't explain the physical pain. 51 years ago I had a daughter and pushed through the pain because hubby was (and still is) very supportive. 48 years ago I had twins. At some point, I began to feel a wee bit better. Gradually, over 13 years "things" went back to normal (well, what is normal for me!). I got back into GO mode, began to write, took on a part time then full time job, tended a huge garden and house, took on some nasty folks and situations (I was never one to shy away from controversy). I was hitting on all eight cylinders as hubby says. There was no stopping me. Nine years ago hubby had a heart attack. I began to feel something was different with me - with my body. Anxiety crept in. And, the days just got worse and worse and worse. I think this bout of Fibro was kick-started by the anxiety and stress of hubby's health issue. Just when I thought I was feeling a bit more positive and was experiencing less pain, hubby had a second heart attack. Boom, I was back to excruciating flare-ups, severe pain issues, sleep issues, stress. My elderly doctor said I was suffering from anxiety. He changed his mind said "No you have fibro". He then said "There's no such thing as Fibromyalgia" and began to prescribe strong meds for pain. I didn't fill one of those prescriptions! When he retired (one can't get a new doctor if one has a doctor around here) I was assigned a young woman doc who said "You do have fibro. You had fibro years ago but it wasn't known then as a disease. You beat it once. You can beat it again. You go girl!" The way I see it is there is light at the end of the tunnel. Sometimes that tunnel is VERY long but if you keep a positive attitude, give yourself a good talking too sometimes, surround yourself with people who understand you and hang in, you will - at some point - pop out the other end of the dark tunnel! Journalize. That helps. Do what you can, when you can. Don't beat yourself up with negative thoughts. Try a TENS machine. Try EFT - (emotional freedom technique - google it). Try hot and cold packs. See the humour in every situation - even if you're hurting bad. NEVER give up! NEVER!!!!!! And one day - you will begin to feel better . . . . . if history, in my case repeats itself and my body and mind heal. But, (and there's always a but) all depends on what's happening around one. Life always throws curve balls. Sigh . . . .

May 18, 2016
A MyFibroTeam Member

@A MyFibroTeam Member & @A MyFibroTeam Member

I feel so bad for what you both went through.. me too I went through an very bad child hood with a baby sister who was very abusive to me from the age of 4. And was abused by her son..I found out later in life because of the bad dreams and night meres I was having my mother told me what happened as a child.
And then was bullied in school and beaten very badly.... I even had to thief money from my parents when I was 6-7 because I was threatened they would kill me if I said anything. Thanks to a friend she told my parents and the kids were expelled from school...

We have for the most part gone through something very traumatic in our lives...

May 18, 2016 (edited)
A MyFibroTeam Member

I dnt remember a day, really..but I remember, me saying to myself once there has got to be smething going on here, I had always lived wth pain since bout 1998, but not like this, this was very strange,,after a bad case of a virus too, cold sore virus I couldnt control my body temp,the aches&pains constantly all over my body. It seems that I have always, felt that I have never had enough sleep, always yawning, never refreshesd.Lots of traumas over the yrs, I just dealth wth alone..never asked for help or told anyone else .But a major factor that got a prpoer grip of me, was when my parents became suddenly ill, afrer seeing everything they went through,, it broke me it smashed me to pieces when they passed, I have felt sooo ill frm that day.They was my parants best friends, the closest people I trusted&could confide in, in anything.That isnt there any more, iam lost.

May 18, 2016
A MyFibroTeam Member

I had read some research papers from Havard Medical School..and it says we have fried a part of the brain called the Hypothalmus..and that is the cause of us not recovering after stressful situations..like healthy people can.usually peptides come to aid us in stressful situations..but since the hypothalmus is not working ..we are not aided by the natural peptides that our body produces..,,The hypothalamus (from Greek ὑπό, "under" and θάλαμος, thalamus) is a portion of the brain that contains a number of small nuclei with a variety of functions. One of the most important functions of the hypothalamus is to link the nervous system to the endocrine system via the pituitary gland (hypophysis).

May 18, 2016 (edited)
A MyFibroTeam Member

@A MyFibroTeam Member
I still see yours:
I was 30, and had a cornea transplant due to an eye disease. The next morning, I woke up with an awful head/neck pain in lower right back of my head. I thought they may have put my head in a "vise" (sp) or something to keep my head still. It stayed 24/7, and was the worst pain. So, then, I thought that it was due to the fact that the other eye had not had the surgery yet, and with a patch on the eye that had the surgery (for 8 months due to problems), and poor vision with the other eye- I had to cock my head to the left to see out of it- ...well, when the patch came off, and the pain didn't go away, I knew that wasn't it. I had already been to the Dr about it... Of course, they diagnosed ....STRESS..., and gave me Elavil....Then, when that didn't work, they sent me to a Neurologist who increased it to 150mg.... I was a zombie... Then, the rest is in my story. It took 8 years to get a diagnosis. The headache spread to all the muscles....etc. And, here we are....32+ years later, and the head/neck pain is still there.... thank goodness that pain is a little less, but that is the one pain I have to take a narcotic pain reliever for......darn it.... oh well, at least it gets the pain down enough where I can think :).

You have to at the top of the page touch where it says ..... View previous answers... And it will pull up all of the above your story ... Let me know if you see it

May 20, 2016 (edited)

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Honolulu, HI

A MyFibroTeam Member asked a question 💭
San Antonio, TX