I think I'VE READ MORE ABOUT fIBRO THAN ANYTHING ELSE I'VE EVER HAD INTEREST IN,I hate being lied to or put off and todays doctors are doing just that so i have to do my own investigating and test myself for what works for me. One fibro sufferer got angry with me because i posted in a group on fb that i did not take meds for my fibro, I have tried some but so far none has helped, heating blanket rescues me when the pain puts me in tears but i've learned not to do what causes more uproar and i'm not afraid to stop an activity if i get tired {{{{{{{{{{{[[[[gentle hugs}}}}}}}}}}}}}}}}}

So sorry to hear all you've been through since you were young. The "bad" karma isn't yours. I hope you now know that. The physical disease is a physical reaction to the trauma you went through. The abusers leave so many unseen scars and, I believe, will receive their just due in time. If not in this life, in the hereafter. Please be loving and caring with yourself. I hurt just hearing that you "fight with yourself." No more fighting. Learn how you can get the best out of the life you have. I believe that your pain will lessen if you do so.

@A MyFibroTeam Member
Thank you for the comment this will help many people on this site to hear what we believe and why

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A MyFibro...

I believe that fibro is not viral but caused by abuse and traumas, it's hard for me to not type in all caps because i'm so use to it due to my eyesight and i had a great paragraph but erased it because the site won't allow me to type in all caps. the first case of fibro ( fm) was said to be around the late 1800's. doctors today have no real interest in learning about fm because it's too difficult for them because each patient is different, it is also genetics, i've had fm since age 9 but was in remission but another trauma caused my flare up and it has stopped me in y tracks for nearly 5 years, i hate not working or being able to walk far i use to walk all over this city without breaking a sweat. either way it's debilitating and not many doctors seem to care

My doctor's most recent lecture was in psychoneuroimmunogy in CFS/ME./SEID. I thought I might share some of the ideas that relate to this discussion.

The idea is that the nervous, endocrine and immune systems are in constant communication and that infectious agents (ef cytokines) might damage the immune system in genetically susceptible individuals.
The immune system produces cytokines that
Interact with hormones in the nervous system and brain. Cytokines attack viruses and produce fatigue and muscle ache.

Infectious agents may be contracted early in life and be reactivated later in life when the system isn't well. Eg the herpes virus.

Patients can be immune overactive (autoimmune) or suppressed (eg HIV, constant infections). This can change over time, perhaps going from overactive to suppressed with time?

It's theorized that symptoms of myalgia, fatigue and psychological distress are due to disorders of the sleep-wake cycle and alpha intrusion as well as immune and neuroendocrine disorders.

The idea that there is HPA axis suppression is present in a subgroup of patients still exists. The issue is in finding a homogenous group to study due to a variety of factors. (I believe that I belong to this subgroup. I have familial hypothyroidism and even my psychiatrist, who doesn't believe in FM or ME, has been saying I have a malfunctioning HPA axis, which he has been treating me for.)

The conclusion of the talk was that we are dealing with 'far more complex issues relating to a close interaction of the brain, sleep rhythm and the influence this has on the peripheral hormones and the immune system'.

In closing, my doctor said that if the problem was simple, they would have figured out the bio markers by now. I know this info is regarding ME/CFS but many of us have ME/CFS along with FM, so there is at the least some biological crossover/interaction between the two illnesses. It would be interesting to know how much crossover there actually is.

Anyway, I hope this material is helpful.