Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

RA Or?

A MyFibroTeam Member asked a question 💭
Redmond, OR

I have been tested for RA and it was negative however I have a couple of friends with it and have the same symptoms as they do. Does anyone else feel like they may have misdiagnosed RA or is it just more symptoms of fibro? So frustrating.

April 27, 2016
 • 
Reactions

Answer Summary

Members connected over the frustrating experience of testing negative for RA while experiencing clear symptoms, with several sharing that... Read more

Members connected over the frustrating experience of testing negative for RA while experiencing clear symptoms, with several sharing that seronegative RA affects about 5% of people and can take a year or more of persistent advocacy before doctors acknowledge the diagnosis. Many community members described the exhausting process of being dismissed by rheumatologists, emphasizing the importance of continuing to report symptoms at every appointment, requesting additional tests like SED rate, and seeking second or third opinions when necessary. A recurring theme was the challenge of distinguishing between fibromyalgia and RA when blood tests are negative, along with mixed experiences with treatments like cortisone injections and the critical need to trust your own body and keep pushing for answers.

A MyFibroTeam Member

If you feel there is something wrong, see a different doctor for a second, third and/or fourth opinion if needed. All "opinions" are the subjective probabilities in the areas of educational and socioeconomic qualities of each and every doctor.

April 29, 2016
A MyFibroTeam Member

@SherryBensonIve had so many cortisone injections in my back, they refused to believe it wasnt helping. I finally refused to get anymore because its so painful to have done. I kept hanging on to it will help. Has it helped you?

April 27, 2016
A MyFibroTeam Member

I have never been tested for that. Are we talking about arthritis? I have osteoarthritis, very bad bone health. My back, neck knees, one knee replaced in 2005, the other one needs it, but will never have it replaced,just get cortisone shots in back , knee, and hips.

April 27, 2016
A MyFibroTeam Member

Did he test your SED rate? If it was negative than this is probably Fibro symptoms.

April 27, 2016
A MyFibroTeam Member

It took about a year before my Rheumatologist stopped dismissing me for testing negative for RA before he did acknowledge that I truely had RA. He said that if I hadn't stuck with him and kept telling him the symptoms I was having every appointment and continued seeing him, that he would have dropped it. I was tested again a year later and my levels had gone up but still not to the point of testing positive for RA

April 27, 2016

Related content

View All

Don't Have RA But Seems A Lot Of People Go To One

A MyFibroTeam Member asked a question 💭
Oley, PA

Has Anyone Been Prescribed A Drug To Treat RA That Has Had Any Affect On Their Fibro ? Or An Anti Seziure Med ? Or Any Other Non Fibro Med ?

A MyFibroTeam Member asked a question 💭
California, CA

FM And RA Disability

A MyFibroTeam Member asked a question 💭
Miami, FL

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in