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A MyFibroTeam Member asked a question 💭
Harker Heights, TX

I find that at any point in the day or night I have jerks happen. I just had one while typing this. It happens during sleep, awake. I never know when it is going to happen. The other night it happened in my sleep. It was so strong I thought the bed broke and woke up my husband. I actually checked to make sure the bed was in tact.

April 16, 2016
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Answer Summary

Members overwhelmingly confirmed experiencing sudden jerks and spasms in their limbs, describing them as unpredictable movements that occur... Read more

Members overwhelmingly confirmed experiencing sudden jerks and spasms in their limbs, describing them as unpredictable movements that occur both day and night, often severe enough to startle sleep partners or disrupt daily activities like typing and driving. Many shared that doctors have labeled these episodes as restless leg syndrome, benign fasciculation syndrome, or tetany, with several members finding relief through medications including Requip, Topamax, Lyrica, Prozac, and Parkinson's drugs, though some cautioned about side effects like compulsive behaviors with Requip. A recurring theme was the validation and reassurance members found in learning these jerks are a common part of fibromyalgia, with practical strategies including adjusting medications, treating underlying sleep apnea, and accepting the symptoms as a manageable trade-off for pain relief.

A MyFibroTeam Member

Yes all the time 24/7. They are called benign fasciculation Syndrome. It's common in fibro. I hate it!! Mine does it continuously.

April 16, 2016 (edited)
A MyFibroTeam Member

Now that I have seen this post, I have noticed more involuntary movements and twitches

April 22, 2016
A MyFibroTeam Member

I had jerking, feeling of bugs crawling on me, knives stabbing me, twitching, etc. My rheumatologist finally put me on Tomamax to give me some relief. It has made a huge difference.

April 16, 2016
A MyFibroTeam Member

I get these at times honey xx

April 16, 2016
A MyFibroTeam Member

I used to have them all the time. Many times a day...several dozen. They were worse at night. They stopped about two years ago. Don't know why they started or why they stopped. Glad they did,,,hope they don't call me back

April 19, 2016

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