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I wad never officially tested for fibromyalgia, not tender point checks, nothing. As it happened I was discussing that I wondered if that's what it was. My doctor, an intern training to be a doctor agreed maybe it was and put me on gabapentin. What I was wondering is it could possibilily be another disease that mimics the same symptoms as fibromyalgia? If by chance it could be something else and they changed my treatment. Maybe I could have some relief. Not that I want to have any disease, I'm just looking… read more

A MyFibroTeam Member said:

If your insurance covers it get a second opinion. I had tests for lupus,Lyme disease,rheumatoid arthritis,and ....... Especially important when taking a prescription drug approach. We want you to have the best life regardless of diagnosis
And that starts with wellness checks complete blood work up

Check insurance and get second opinion. Hugs girlie

posted almost 5 years ago
A MyFibroTeam Member said:

There a any number of autoimmune diseases, disorders or syndromes it could be. It could be FMS, MS, Lupus, RA, PA, OA, CFS/ME or a combination of any number of them. You need to find a doctor that specializes or is very familiar with autoimmune diseases and syndromes and have them do a full evaluation. Unfortunately, FMS has in some doctors minds, after not being a "real thing" for many years, become the catch-all for the "I don't know, you have something but we will just call it FMS and treat the symptoms, so here's a pill go away treatment plan." I actually had a doctor tell me that. It didn't matter what autoimmune disease it was, we would just treat symptoms anyway.

So. Find a good doctor who is willing to research and determine what it is you have so you can treat it properly. But you must be willing to go through lots of tests that show there is nothing wrong. Especially if it is FMS. Because they will find nothing wrong. It is frustrating and expensive. But you will have your answer and can go forward with confidence in your treatment plan. Good luck. xo

posted almost 5 years ago
A MyFibroTeam Member said:

Yes don't let doctors chalk up all your symptoms to FMS without ruling out other causes.

posted almost 5 years ago
A MyFibroTeam Member said:

I would ask my doctor to check for other things such as MS and Lupus!

posted almost 5 years ago
A MyFibroTeam Member said:

DiannaHerra: Finally someone who agrees with my post on autoimmune and its link to many dusorders once properly diagnosed. I made the mistake of mentioning that and many ppl disputed my reply. I was in the medical fueld for almost 30 years so wasnt just giving an unexucated guess. It sounds like you are well versed on the subject of autoimmune disorders, as well.

posted almost 5 years ago
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