Chari Malformation | MyFibroTeam

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Chari Malformation
A MyFibroTeam Member asked a question 💭

I have suffered with this that I know of sinc 2007 but the symptoms all my life having been born with it, Has anyone heard of this it is at times very debilitating and some symptoms I suffer are Migraines,chronic pain in the base of the head top of the spine, down side of neck and across the shoulders caused by a hole in the base of your skull and the brain pressing on the top of the spine, which along with the Osteo/Rhumatoid Arthritise impedes my walking. It has got worse as I have got older… read more

posted March 28, 2016
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A MyFibroTeam Member

I've not heard of it before. But everything you've spoken of i've experience those same symptoms since back in 2012. We don't have alot of good rheumologists in south Florida. So i'm thinking of going to northern Florida where there are alot more rheumologists to get to the bottom of things. I don't like taking pills. Because of all the side effects.

posted March 28, 2016
A MyFibroTeam Member

Hi, I used to have severe migraines and I had a MRI. In 2003 and it said I have a minimal Chiari 1 malformation . The Dr. put me on Topamax twice a day and I hardly ever have a headache anymore.

posted March 28, 2016
A MyFibroTeam Member

Boy we get some interesting things on here. It makes interesting reading. I have never heard of it and i think the fibro is bad enough let alone that as well. Sending love and healing for you. Cheers Sharon

posted March 28, 2016
A MyFibroTeam Member

It's spelled Chiari Malformation (Key-r-ee Mal-formation). My daughter has type 1.

posted March 28, 2016
A MyFibroTeam Member

No.. never heard of it but then I see a lot of things on this site I've never heard of before. It's like learning a foreign language.

posted March 28, 2016

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