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Difference Of People
A MyFibroTeam Member asked a question πŸ’­

I understand that people handle fibromyalgia differently but I have two friends that has fibromyalgia and they can do anything and everything and plus they are older than me. But yet I can barely walk and do anything without pain. I don't get it can anyone explain this to me?

posted March 24, 2016
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A MyFibroTeam Member

I said the exact thing, you couldn't pay me enough to buy any of my pills, not even just my narcotics any of them i need every pill im on! And your right its people like that who are giving the people who really need pain pills are hard time getting them because they have given everyone a bad name i couldn't stand going to a pain center, im so thankful that my doctor now also does pain management in her office as well but you have to be one of her regular patients to get the pain management and she calls you in for a regular pill count, she counts your pills at every appointment, and test you to make sure you have the right levels of meds in you to make sure your the one taking them so you don't see none of that crazy stuff going on in her office, but when i first was diagnosed with fibromyalgia i read alot on it and have studied it since day one so i am educated a good bit ,but fibro is one of them that can throw you curve balls sometimes, and even though i do know alot about fibromyalgia i still like to ask questions and read other people's stories because like you said it's still comforting knowing your not alone.

posted March 24, 2016
A MyFibroTeam Member

Fibro1 I fall a lot and most of them are tumbles, one was pretty bad. I had my cane to. I use a hurry cane and they are great. Better balance with that than any other cane.

posted March 27, 2016
A MyFibroTeam Member

I guess I am on the other side. I am pretty active for a fibro person. I work a full time job. I keep up most of the house. I take care of the pets and do the shopping. But I always make sure I come home and relax. I take lot of baths. I always try to find little ways to make days more doable. Before I had fibro though my pain tolerance was absolutely through the roof and I have always been very driven. I fear the day I need a can because I know it's coming. It's not fair that other people with fibro tell you that though I am sorry they don't support you

posted March 25, 2016
A MyFibroTeam Member

It's people like the ones you described that are making it more difficult for those who need pain meds to get them! My husband and I were talking about this after picking up our meds and how much they were worth on the street. We both say that that's how we know we're in real pain because you can't pay me enough to buy my pills. Because I need them.

One of the reasons I like this site so much is I read all the symptoms that others have and realize I'm not crazy. I'm not alone. Others hurt and live just like me. As sad as that is..... I don't know about other people who don't seem to hurt like I do. Maybe their symptoms are mild. Or maybe they are severe and I just don't see them when they are flaring. Nothing about this stupid fibro is fair.

posted March 24, 2016
A MyFibroTeam Member

I understand completely what your saying im 38 and feel bedridden half the time , when i do anything major like a good cleaning on the house, scrubbing bathrooms and cleaning carpets i pay for it for days! I've actually lost friends since my diagnosis that i never thought i would because i guess they got tired of hearing about it or having to just sit around and visit and i simply couldn't do the things i could do before, but all my aunt's and my mom have it and most of the have had it 20 years or more, my one aunt is 65 and has more of a active social life than i do, she's constantly going, just very active, all the sisters still get together and do more active things than i could ever do and the one aunt that's the most active doesn't understand why im so down and in pain all the time, she's actually hurt my feelings on more than one occasion saying she believes im over reacting because shes 65 and had fibromyalgia since she was 18 and never had it as bad as i act like i do! But i also went years without pain medication and she was on morphine patch and Percocet 10mg and several other fibromyalgia meds so i politely let her know that to, so ive always wondered the same thing myself and my doctor has just told me that everyone experiences different symptoms that every patient is different from the next its not because we are anymore weaker as a person its just everyone's body responds different, my rheumatologist has told me that i have one of the worst cases of fibro out of all his patient's so i asked him and he told me basically the same answer except that not all fibromyalgia patients actually get all the symptoms and im one of the ones that do and so it makes it harder on your body.

posted March 24, 2016

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