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Has Anyone Else Been Diagnosed With Fibro Without Having ANY Of The Pressure Points That They Check For?

A MyFibroTeam Member asked a question 💭
Spring Lake, MI

After suffering with constant, everyday pain all over my body for about 6 years, I was referred to a Neurologist that diagnosed me with Fibro. The problem I had with the diagnosis is that from what I understood of Fibro, I will have good and bad days, and I should have some pressure points that are tender. I can honestly say, I never have a completely good day, as the pain is always there, but with my meds I sometimes have a better day. I also experienced none of the pressure points that are… read more

February 16, 2016
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Answer Summary

Members enthusiastically validated the experience of being diagnosed with fibromyalgia without the traditional pressure points, sharing that... Read more

Members enthusiastically validated the experience of being diagnosed with fibromyalgia without the traditional pressure points, sharing that fibro manifests uniquely in each person and that newer diagnostic criteria focus less on tender points and more on widespread, chronic pain across all four body quadrants. Several members described having constant daily pain rather than the expected good and bad days, with some experiencing pressure points that developed over time or appeared in non-traditional locations, while others never developed them at all. A recurring theme was the importance of self-advocacy through research and journaling, the frustration of finding doctors who truly understand fibro's variability, and the reassurance that a diagnosis can be valid even when symptoms don't fit the textbook description.

A MyFibroTeam Member

I too do not have "pressure points". But --- I do have constant pain and have had since 1975. This makes a diagnosis very difficult unless you are lucky to find a doctor who understands fibro. It's not a cookie cutter disease.............. Each and every "body" is unique and what one person feels another may not. I have made it a point to research fibro and it amazes me how many symptoms and conditions can be traced back to fibro AND to many other diseases. Very confusing...no straight lines. Arm yourself with knowledge. I am hoping you have a good day. ((HUGS))

February 16, 2016
A MyFibroTeam Member

I found this article a couple days ago. It may be helpful.
http://fibromyalgiandme.weebly.com/3-types-of-f...

February 16, 2016
A MyFibroTeam Member

DebbieJonson that's very true. I guess we all have lots of things in common, but we all have differences too. Thanks for the reminder :) It makes me feel better to know that I'm not just misdiagnosed, because I definitely feel the pain and everything else that goes along with Fibro, just not the pressure points.

February 16, 2016
A MyFibroTeam Member

The newest guidelines for diagnosing fibro ignore the tender points and simply require pain in all four quadrents of the body- though it still typically localizes to the tender point areas.

February 18, 2016
A MyFibroTeam Member

@A MyFibroTeam Member. Thank you for that link. That explains about the medications that work for me when other people are saying drs say narcotics are not effective for fibro. @A MyFibroTeam Member, I don't understand about the dr not checking your pressure points for fibro but everyone is different.

February 16, 2016

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