Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Cincinnati, OH

Im having a flare and I've noticed I'm having issues with fibro fog and with speaking. Sometimes I can't find my words and when I do I say them incorrectly. It's scary. Anyone else experience this?

January 30, 2016
 · 
Reactions

Answer Summary

Members overwhelmingly validated the experience of speech difficulties during fibromyalgia flares, describing symptoms like word-finding... Read more

Members overwhelmingly validated the experience of speech difficulties during fibromyalgia flares, describing symptoms like word-finding problems, slurred speech, mid-sentence blanking, and mixing up words that feel alarmingly similar to dementia or stroke. Several members shared that these cognitive challenges create real stress in professional settings, from call center supervisors and teachers struggling through presentations to volunteers feeling embarrassed when they cannot recall familiar terms. A recurring theme was learning to accept fibro fog as part of the condition rather than fighting it, with many finding relief in humor, self-forgiveness, and surrounding themselves with understanding family, coworkers, and communities who recognize these flares as temporary rather than permanent decline.

A MyFibroTeam Member

yes totaly. During fibro flares I have eye, speech, and walking issues

January 30, 2016
A MyFibroTeam Member

Yes. All The Time! I used to be really upset about it. Now I just laugh about it. A lot of people experience this that I know. I just accepted it as a part of fibro.

January 30, 2016
A MyFibroTeam Member

I am teaching/learning at the moment voluntarily and I too have moments when I cannot find the words I have taught a thousand times. It is very worrying and frustrating. I also work with hospital patients in their 80's / 90's and sometimes feel that this is not disimilar to dementia ?? This scares the hell out of me :(

January 30, 2016
A MyFibroTeam Member

It is like a roller coaster ! One day you feel like all is working pretty good another cant get out of the bed. And can't plan anything. I cancelled my hair appointment three times this month. Just head hurt so much , even skin, I couldn't let anyone touch me.

January 30, 2016
A MyFibroTeam Member

I find I struggle with talking, like you I can't find the right words. It gets embarrassing and is very stressful

January 31, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
McCrae Victoria Australia

A MyFibroTeam Member asked a question 💭
Grand Prairie, TX

A MyFibroTeam Member asked a question 💭
Rogers, AR

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In