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Interstitial Cystitis

Interstitial Cystitis

I was diagnosed with it a couple months ago. I cut out most caffeine, carbonated beverages, chocolate and anything with extra vitamin c. I take a antihistamine at least once a day but it doesn't seem to make a difference. My doctor put me on elavil to help with insomnia, IC and IBS. I was wondering if anyone else had a suggestion for something else to try at home?

A MyFibroTeam Member said:

I've been borderline interstitial cystitis for years. It's hard to tell when you have an infection when you have burning quite a bit of the time. And regular doctors want to immediately treat you for infection and that's not what you have. There's a lot of foods to stay away from anything with the acid, a lot of antihistamines will aggravate it too. Anything with pseudoephedrine will do it. You can't hardly find any that doesn't have that in it. I got off tea for years but can drink it now and Dr Pepper. I was really good for a while and then started having some symptoms. I went to a doctor that specialized in females and we figured out the diet pill I was taking was doing it. If it hadn't been for a book written by Larrian M. Gillespie, a female urologist, she saved my life years ago. She wrote the book "You Don't Have to Live with Cystitis". It's a great book to read and keep on hand.

edited, originally posted over 6 years ago
A MyFibroTeam Member said:

Go gluten free

posted over 6 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member

I was going to try and explain it then I realized it would be both easier and clearly if someone else did. So here's a link from the mayo clinic about it.

http://www.mayoclinic.org/diseases-conditions/i...

posted over 6 years ago
A MyFibroTeam Member said:

I'm prescribed Mebeverine for my IBS, Tramadol and Paracetamol for my Fibro and Ropinirole for my leg spasms. I've also started taking Sage tablets to lower my body temperature and reduce the hot flashes/night sweats.

edited, originally posted over 6 years ago
A MyFibroTeam Member said:

I don't know why but wearing Jeans is a no no for me, it brings it on. When I feel a flare up happening I use an flat icepack (like a sanitary napkin but on the outside and wrapped in a towel) and it usually helps. It isn't the best look but I only do this at home of course and my family understand.

posted over 4 years ago
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