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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question ๐Ÿ’ญ
Mossley, UK

I read an article about a woman with fibro who was trying to describe why since she got ill she can't face cooking. She was saying the same thing over and over but in different words. I've tried to explain it but like the woman couldn't get my feelings into words. Does anyone else feel the same and how would you describe how you feel.

January 25, 2016
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Answer Summary

Members shared how fibromyalgia has transformed their relationship with cooking and eating, with many describing a profound loss of appetite,... Read more

Members shared how fibromyalgia has transformed their relationship with cooking and eating, with many describing a profound loss of appetite, heightened sensory sensitivities to smells and sounds, and overwhelming exhaustion from standing or waiting for food to prepare. Several members mentioned practical adaptations like choosing quick meals such as soup or cereal, batch-cooking and freezing meals on better days, and forcing themselves to eat despite nausea or an active gag reflex. A recurring theme was the grief of losing something once loved, the challenge of explaining these changes to others, and the strategic choice to save precious energy for activities that bring genuine joy rather than spending it on cooking.

A MyFibroTeam Member

I think food smells are tougher now for me. My hearing, smell, taste, etc. are all super sensitive since I have had fibro. And sometimes cooking just takes too much energy, eh?

January 25, 2016
A MyFibroTeam Member

Sorry about that hit wrong button but, food is the last thing on my list ever, I have people remind me constantly to eat I just don't want to eat and most of the time the smell makes me sick . I hope this helps some ....,, Tear

January 25, 2016
A MyFibroTeam Member

Cooking is a love I have had since I was about 7. Sometimes my fibro is so bad that I have trouble standing in the kitchen to prepare a meal. Sometimes when I am feeling good I will make something really good and purposely cook extra so when I am not feeling good These freezer meals can either go into the oven or the microwave for a delicious, and nitrustious meal.
I really need my VCR so I can play old VHS exercise tapes to get me moving. The more I move the easier it is on me. Standing in one spot for even 15 minutes is too hard for me that is when the bologna sandwiches and chips are supper.

January 27, 2016
A MyFibroTeam Member

Hi Yanto, I have had the same problem with loss of appetite. I've always been one to not really get hunger pains,or desire to eat until I realized due to symptoms, like you said, feeling shaky etc, then I realized how long it had been since I ate last.
I will say I noticed since being in pain and on such heavy pain meds, my appetite isn't very good. But just the last few days, after I eat, I've been getting an upset stomach. Might be because I've been sick all weekend and now, with an upper respiratory infection etc. I'm finding it difficult to eat at times. I don't know if you take any kind of med for gastric reflux, but the meds we have to take just to function, can be pretty irritating on the stomach. Might want to ask your Dr about a med like Pepcid, Protonix, Prilosec. May help you tolerate eating better. Best of luck. Barb / BCRN

January 25, 2016
A MyFibroTeam Member

Yes, I am so confused myself as to what is going on! Each day is different and I struggle to tell people what is going on with me. If something doesn't happen today, I forget about it. Plus it doesn't help to have fibro fog

January 25, 2016

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