Answer Summary

Members responded to a question about participating in fibromyalgia research, with most sharing that they had never been involved in a study... Read more

Members responded to a question about participating in fibromyalgia research, with most sharing that they had never been involved in a study or even aware of any in their areas, though several expressed willingness to participate if something nearby became available. A few members mentioned specific research opportunities, including a medication study in Toronto (though one member cautioned against it due to concerns about being a guinea pig), a Complex Chronic Disease program in Vancouver, and a University of Michigan study starting in warmer weather. A recurring theme was cautious optimism, with members willing to try anything that might help but frustrated by the scarcity of fibromyalgia research and relying on Facebook groups and online searching to stay informed about potential opportunities.