Does Anyone Have Narcolepsy? | MyFibroTeam

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Does Anyone Have Narcolepsy?
A MyFibroTeam Member asked a question šŸ’­

I had to have a sleep study done maybe 2 years ago. Becouse I just was getting good sleep...the doctor had me do the regular overnight sleep study and a nap study...the over night study showed that I never even came close to ream sleep....for the nap study you take 15 min naps every hour for about 5 hours. Well every time I took the naps I would go right into ream sleep. So they told me I had narcolepsy and it's part of my fibro.

posted January 16, 2016
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A MyFibroTeam Member

When this started I would fall asleep in the car like at red lights,stop sings..it would scare me. I finely said something to the doctor he sent me for the sleep study the only time I went into rem sleep was nap part..it's crazy what more is fibro going to do to my body?

posted January 23, 2016
A MyFibroTeam Member

Going for MLST way beyond RDS now but may need stimulant hard as hell to get!

posted July 3, 2020
A MyFibroTeam Member

Poster what meds were u given?

posted June 25, 2020 (edited)
A MyFibroTeam Member

Sarcar please update Diagnosis, meds? Iā€™m very similar

posted June 25, 2020 (edited)
A MyFibroTeam Member

I had same sleep study n have excessive daytime sleepiness possible rule out narcolepsy. Been through multiple sleep studies over the years w cpap. Now finally neurologist referred me to ent who found why my cpap not working. Scheduled for nasal surgery next week. Also I'm on oxygen w my cpap. I could sleep all day n had sudden nap attacks. Do you know when you have sleep attack?

posted January 16, 2016

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