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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
New Jersey, NJ

Does anyone actually physically go to a support group in their area? I live in New Jersey and am looking for one and was wondering if actually sitting around and talking in person helps as well?

January 8, 2016
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Answer Summary

Members responded to a question about physically attending fibromyalgia support groups, with those who have attended describing them as... Read more

Members responded to a question about physically attending fibromyalgia support groups, with those who have attended describing them as genuinely helpful spaces where people openly share how the illness affects daily life and form meaningful friendships without judgment or the familiar refrain of 'you don't look sick.' Several members shared practical resources like the FMCPAWARE website for finding local groups, with some describing how support groups helped them learn crucial skills like pacing themselves throughout the day to avoid post-exertion crashes. A recurring theme was the search for connection, with multiple New Jersey members expressing hope to find or start a local group in their area, particularly in Ocean County, while others mentioned exploring therapy as another tool for accepting life's limitations with chronic illness.

A MyFibroTeam Member

I'm not involved in a local support group, but have been thinking about it. Right now I'm looking for a good therapist to help me cope with accepting the limitations in life with having fibromyalgia. I could see where support groups may help with that.

January 8, 2016
A MyFibroTeam Member

I was lucky enough to have a nurse to come to my home to help me with pacing myself throughout the day ie in cleaning getting dressed, preparing a meal and help with other day to day thing's, i was a fool to myself i would get up in the morning and have a coffee then start cleaning i would spend about 2 hours without stopping then spend 2 days in bed unable to even walk or do anything for myself, i now listen to my body and it tells me when i have done enough for today , i also have other illnesses that does not help with my fibro. im under the drs at Rheumatology that is were my visits to support groups started. I wish you every success in finding a support group i am sure you will enjoy them, take care much love xxx

January 8, 2016
A MyFibroTeam Member

HI yes i have been to 3 support group's and i have enjoyed every one of them, you all sit in groups and talk about how this illness affects them in there day to day life, and i met some lovely friends i found it very useful, if you get the chance to go you would enjoy it, hope this help's xxx

January 8, 2016
A MyFibroTeam Member

I think there is one in Ocean County I think it is at Brick Hospital or Community I will watch and see.

January 10, 2016
A MyFibroTeam Member

I used to when I lived in Marion VA and when I lived in Hopewell, VA. Of course it helps because for that hr or two you are with people who know what you go through on a daily basis. Just like on here there is know Judgement or saying well you don't look sick. I really enjoyed my support groups.

January 9, 2016

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