Answer Summary

Members connected deeply over the confusing experience of feeling intensely hot while having icy cold extremities, with many initially... Read more

Members connected deeply over the confusing experience of feeling intensely hot while having icy cold extremities, with many initially attributing it to menopause before realizing fibromyalgia disrupts the body's ability to regulate core temperature. Several members shared practical coping strategies including layering clothing, using fans year-round, keeping blankets handy to throw on and off, wearing socks on hands at night, and trying guided visualization techniques like imagining holding ice to mentally cool down during severe episodes. A recurring theme was the hypothalamus gland's role in temperature regulation being affected by fibro, the distinction between thyroid issues and fibro symptoms, and the relief of knowing these bewildering sensations are real and shared by others rather than being imagined or going crazy.