Connect with others who understand.

sign up log in
Resources
About MyFibroTeam

Connect with others who understand.

sign up log in
Resources
About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Fibro As Long As It Has Been Around You Wonder Why Dr Don't Know More About It.

Fibro As Long As It Has Been Around You Wonder Why Dr Don't Know More About It.

If fibro has been around so long why don't more Dr know about it? When I go to my Dr he says it a bogus reason for what they can't figure out. He has sent me to 2 different specialist now in order to get a answer that I can't seem to get I go to another one in February. What the hell is the problem.

almost 7 years ago
A MyFibroTeam Member

***Updated***
Well, I agree with others that there is not enough doctors who are experienced with Fibromyalgia. At the same time though, Fibromyalgia has many symptoms that doctors can mistakenly diagnose individually or as a whole. Some may attribute fatigue, weight gain, memory issues to getting older.
Some may attribute it to thyroid disease since symptoms mirror those with thyroid issues. Unfortunately, even for those previously diagnosed with thyroid disease may still continue to be symptomatic. Thyroid medicine is not a cure all. It's simply replacing something that you can no longer hormonally produce on your own, and nothing man made will ever be as good, or better than the real thing. The same goes for medication for Fibromyalgia. It's not a one size fits all. For some patients, some meds work better than others, while for some not at all. Why that is may be individually based for one.
Another issue is so many diseases out there carry the same symptoms, which make it even more difficult to diagnose properly. This in itself can be very frustrating for patients. We must remember that doctors are only human. They to can make mistakes before finally narrowing down the real issue if they are experienced in Fibro to do so. If you do have a doctor that is not working with you or you feel you are not receiving the care you desire, find another doctor. Doctors can be like shoes, you sometimes have to try on a few before you find the right fit. Or perhaps you have a doctor that you've had for awhile that has just run its course. Either way, look into your doctors like you would when buying a car. Look at history, reviews etc. for starters. It may take a visit or two before you figure it out.
Anyway you look at it, not enough is known about Fibromyalgia, but the medical field is slowly coming around. Fibromyalgia and some of its many issues such as pain, sensitivity to lights, sounds, dizziness is now thought that many are in part a result of abnormal sensory processing. So much is being discovered, we just have to wait, be patient for all doctors to "catch up".

almost 7 years ago (edited)
A MyFibroTeam Member

@A MyFibroTeam Member Here are a few websites that are valid in the info they give. I would print out what is needed and bring it with you to your pcp. If he still gives you problems you must switch to another dr. I see my rheumatologist far more than my pcp. Every 3 mths for Rheum. and once a yr for pcp unless I am sick with cold/etc. Good luck.

http://nationalpainreport.com/the-health-care-i...-(Phone number can only be seen by the question and answer creators).html

http://www.fmcpaware.org/fm-a-real-medical-dise...

while this next on is a woman's reference this is a govn site
http://www.womenshealth.gov/publications/our-pu...

this one is specifically for Dr's to help educate them on the subject!

https://www.hss.edu/professional-conditions_top...

over 6 years ago (edited)
A MyFibroTeam Member

So many doctors believe that when someone complains about so many symptoms are asking for attention and nothing is really wrong. You need to find a doctor that knows about Fibro.

almost 7 years ago
A MyFibroTeam Member

I have begun finding and building my medical team from: healthgrades.com. This is where PATIENTS take surveys and tell unbiased truths about the physicians and specialists in YOUR local area (here in the US I know of at least). I am waiting for the call for the apptmt with a new rheumatologist in fact from that site and will play by ear as it comes. Entrust in your senses, your instincts, your gut feeling, your life force, your spirit!!!! It will NEVER steer you wrong in dealing with even ones in the medical field. I have suffered longer than need be from misdiagnoses, wrongful treatment plans/attempts, etc.

over 6 years ago
A MyFibroTeam Member

Your MD isn't very bright. Basically the medical community is being asked to treat a disease that they can't see. Fibro is purely subjective, meaning everything comes from the patient, There is no bloodwork to prove it exists, no graphs or tests or anything other then the word of the patient.

Prior to being Fibro, it was chronic pain syndrome, or neuralgia or a million other things. It is only through the idea of the world being smaller and people having access to one another regardless where they are that it was discovered that so many of us have so many of the same symptoms that they REALLY began to see we weren't all crazy and that something was going on.

Many MD's don't believe its real even now. If your's tells you it's bogus, you need two things, 1) a new MD with a better attitude for his patients and 2) an MD who knows what is going on with you. Your doctor is neither of those things and you could suffer from his ignorance.

Many of us here have been in the position of knowing more about Fibro then our doctors do. Find one that doesn't mind learning a thing or two from his patient!

over 6 years ago

Related content

View all
Doctor In Los Angeles
A MyFibroTeam Member asked a question 💭
Candida/yeast Issues
A MyFibroTeam Member asked a question 💭
I've Been Finding Painful Lumps In My Arms.
A MyFibroTeam Member asked a question 💭
Already a Member? Log in