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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Dayton, WA

How do u explain to ur significant other that u are not faking all the pain and weakness u have anymore with out them getting upset like when u are weak and can't do anything or even go anywhere moat of the time and are severally depressed and felling worthless

December 14, 2015
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Answer Summary

Members shared the painful reality of loving partners who struggle to understand or believe the invisible pain and exhaustion of fibromyalgia,... Read more

Members shared the painful reality of loving partners who struggle to understand or believe the invisible pain and exhaustion of fibromyalgia, with many describing feelings of being dismissed, accused of faking symptoms, or left to cope alone while their partners refuse to read about the condition or attend appointments. Several members offered practical strategies including sharing the Spoon Theory story, inviting partners to doctor visits to hear explanations firsthand, finding outside support through counseling or online communities, and setting boundaries around what can realistically be done each day. A recurring theme was the heartbreak of feeling unseen by the person you love most, balanced with the understanding that relationships require compromise, honest communication without keeping pain bottled up, and sometimes accepting that a partner may never fully understand but must at least believe you.

A MyFibroTeam Member

You shouldn't keep your feelings bottled up inside you. Hopefully this site will give you support and encouragement and allow you to share your feelings with people who understand. I know it's very hard when husbands don't understand and many of them don't, including mine.

December 14, 2015
A MyFibroTeam Member

I know what your going through. I remember being 16 and giving my boyfriend a book on Fibro. They have to want to be there for you and understand what your going through. I found it was hard for ppl to understand because its not a disease its a syndrome, therefor, people sometimes think it means its not as bad. Support from loved ones is what helps us get through the day. I always said you don't have to understand it but you have to believe in me. Also, having him maybe come to the doctors with you so he can get answers to any of his own questions.

December 18, 2015
A MyFibroTeam Member

Good Luck with this one, my boyfriend and I of 2 years just split because he was positive that I was faking my symptoms of exhaustion among other things. I endured many lectures on all I need is "fresh air and sunshine"...thinking of you, hope all goes well dear one.

December 16, 2015
A MyFibroTeam Member

Just be honest or find a page explaining fibro myalgia and get you partner to read it, hope this helps xx

December 15, 2015
A MyFibroTeam Member

It's not easy for the other person and my wife had a hard time in the beginning but she cared enough to educate herself she goes to my doctors with me reads new info and try's to help me that being said there are times she wants to go out and I just can't it takes some compromise and understanding on both sides

December 14, 2015

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