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Waking Up With Headaches

A MyFibroTeam Member asked a question 💭
Phoenix, AZ

Every day I wake up with a headache even when I take my pain meds and go back to bed the next time I get up my headache is no better and sometimes worse. I have been dealing with headaches for so long(more than ten years) I have had MRI and CT with "normal" results. I have headaches all day but it seems to be worse in the morning... As if mornings were not hard enough already.... Any one experience this? Any ideas on how to improve?

October 21, 2015
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Answer Summary

Members shared deeply about waking up with chronic headaches and migraines, with many describing daily pain lasting over a decade despite... Read more

Members shared deeply about waking up with chronic headaches and migraines, with many describing daily pain lasting over a decade despite normal scans. Several members found relief through sleep studies revealing conditions like sleep apnea or severe REM deprivation, Botox injections that reduced frequency and intensity, avoiding rebound headaches by working with doctors to taper off certain pain medications, and using CPAP machines or morning caffeine in moderation. A recurring theme was the vicious cycle of needing sleep to recover yet sleep itself triggering the pain, with practical strategies including occipital nerve blocks, preventive medications like amitriptyline or seizure drugs, ruling out teeth grinding with a dentist, and identifying food triggers like processed meats.

A MyFibroTeam Member

I've had chronic migraines for 13 years and they are so much worse in the morning. I drink 2 cups of coffee and wait it out. It will normally lesson to a pretty good headache midmorning. I just started doing botox injections and have noticed my migraine/headaches are not as bad but still there. I have never had my sleep checked out though sounds like a good place to go next!!

October 21, 2015
A MyFibroTeam Member

It sounds like to me you have rebound headaches. You get a headache and take the medicine then get another headache because the medicine has worn off. I had these years ago from the drug Fiorinal. Certain drugs are notorious for this. I had to have an occipital block which was a shot in the back of the head from my internist and then I stayed on a low dose around the clock of amitriptyline for a couple of months. I finally got on a seizure drug that helped my everyday headaches. I would still have a migraine during my period but would take Zomig for that. A lot of doctors are not familiar with rebound headaches. It usually takes the doctor to get you out of them. I've known quite a few people that had them in the past. There are certain medicines that I can only take short term because of that. One of them is Soma, a muscle relaxer.

October 21, 2015 (edited)
A MyFibroTeam Member

My chronic pain doctor requires sleep studies. I too get migraines and even awaken in the middle of the night with them.

I just got my sleep study result reflecting that in the nigh of my study I got 4 minutes of REM stage of sleep resulting in extreme sleep deprivation causing migraines, impacting fatigue (obviously), decreasing cognitive function and exacerbating how we experience pain.

Is a sleep study an option for you??

October 21, 2015
A MyFibroTeam Member

I wake with headaches most mornings and have been a migraine sufferer since 2008. I also have sleep apnea and was told that when I stop breathing in my sleep it lessens the oxygen to my brain therefore I wake with headaches. Not been so bad since using CPAP machine but if I fall asleep during the day without warning I'm in trouble of getting headache / migraine. I use sumatriptan for migraines as son as I feel it coming on. They're very good but if the migraine is full blown they're no good I just have to try sleep it off... its a vicious cycle as sleep causes the head pain... Feel for all my fellow fibro sufferers...

October 21, 2015
A MyFibroTeam Member

Yep me too . Doc reckons its because I grind my teeth sleeping

October 3, 2016

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