Waking up, and trying to move, and screaming in pain, my kids waited on me hand and foot, gotta love 'em! They cooked and cleaned and picked up groceries when we needed them too, even at 13, 16,& 19, it was a big thing for them to do it, they had their own lives. But never left without making sure I was alright and fed, and had everything I needed till the next one came home. I was like this for weeks, and more weeks to get up and around and mobile, I guess that's one of my worst, and feeling helpless and guilty, from my lack of independence ! But that's only happened a few times, it's seems to be from start winter every year for last 2 winters now, till it starts to warm up again?
The last 2 winters have had me on crutches? I'm over it at least I know I've got 7 months before next winter?!

My worst flare was probably a year ago. I woke up and just found I suddenly could barely move, and every time I tried, I wanted to cry... unfortunately my room is upstairs, and my bedroom is downstairs, so I was forced to move since wetting the bed was not an option. By the time I got to the stairs I was gritting my teeth, getting down the stairs was near impossible. I had myself wedged up against the wall to help me slide down slowly.

After getting to the main floor, I almost literally bounced off furniture and other objects until I got to the bathroom, by then I WAS crying in pain. Wiping was one of the worst experiences ever (and I seriously considered not doing it). I finally managed to get out to the couch and collapse... at this point my mother was kind enough to give me one of her oxycodone, and my uncle brought over some marijuana for me to smoke... I spend the rest of the day asleep on the couch... whimpering in my sleep according to my mother.

Oh boy! Almost Every day for months pain all over, the pain pulsating through my entire body. The background pain( constant deep in the bone) excruciating but the pulsating waves even More excruciating. To where all I could do is lie on the couch crying. That's what my bad flair ups are like they are very exhausting as well.

I woke up the same and my kid's had to do the same I was like that for five days

When I'm out with family or friends having dinner and my lower back and
Hips pain so bad, I must stand up immediately, everyone looking at me like I'm nuts, remember this could be in an upscale restaurant. I just smile and say I need
To stretch.