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What Are You Doing For Sjogrens? Who Treats It?

What Are You Doing For Sjogrens? Who Treats It?

Neurologist diagnosed me with Sjogrens in 2011. I've been using keeping a cough drop in my mouth overnight for several decades. Dry mouth, dry eyes, dry skin, vaginal issues, etc.

Recently saw ophthalmologist who said I really need to have the Sjogrens treated as my eyes are extremely dry and Sjogrens could have a serious impact on internal organs.

To date, I haven't found any doctor who CARES about Sjogrens. They just consider it "dryness".

So what kind of doctor… read more

A MyFibroTeam Member said:

Good luck- don't stop asking questions and advocating for yourself.

posted about 5 years ago
A MyFibroTeam Member said:

I can't get the biotin anymore at my local Walgreens. I did find that ACT dry mouth lozenges help but it makes anything you eat afterwards taste nasty.

posted about 5 years ago
A MyFibroTeam Member said:

I have that as well. I use gel drops for my eyes all day long, XyliMelts for dry mouth and tons of water all day and night. My skin is very dry and rough and rashy. None of my doctors seems to make a big deal of it other than my opthomolagist. She is worried about my eyes and tried ductal plugs which kept coming out. Then restasis which I was allergic to. My pulmonary doctor (asthma) thinks my severe fatigue is from the Sjogrens, not the fibro, but I think from both. I very rarely wear any eye makeup anymore.

posted about 5 years ago
A MyFibroTeam Member said:

I see a rheumatologist. The first one told me I had it then I didn't. Left me very confused. Then the second one said I do. So I am now on Plaquenil to treat the systemic symptoms, I am on skin creams to treat my dry skin, eye drops for my dry eyes, and special tooth paste for my dry mouth and in between times Biotene products.

posted about 5 years ago
A MyFibroTeam Member said:

Tried that. Have an apt in Nov with new rheumy

posted about 5 years ago
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