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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Are You Doing For Sjogrens? Who Treats It?

A MyFibroTeam Member asked a question 💭
Canton, OH

Neurologist diagnosed me with Sjogrens in 2011. I've been using keeping a cough drop in my mouth overnight for several decades. Dry mouth, dry eyes, dry skin, vaginal issues, etc.

Recently saw ophthalmologist who said I really need to have the Sjogrens treated as my eyes are extremely dry and Sjogrens could have a serious impact on internal organs.

To date, I haven't found any doctor who CARES about Sjogrens. They just consider it "dryness".

So what kind of doctor cares about… read more

October 14, 2015
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A MyFibroTeam Member

Good luck- don't stop asking questions and advocating for yourself.

October 14, 2015
A MyFibroTeam Member

I can't get the biotin anymore at my local Walgreens. I did find that ACT dry mouth lozenges help but it makes anything you eat afterwards taste nasty.

October 16, 2015
A MyFibroTeam Member

I have that as well. I use gel drops for my eyes all day long, XyliMelts for dry mouth and tons of water all day and night. My skin is very dry and rough and rashy. None of my doctors seems to make a big deal of it other than my opthomolagist. She is worried about my eyes and tried ductal plugs which kept coming out. Then restasis which I was allergic to. My pulmonary doctor (asthma) thinks my severe fatigue is from the Sjogrens, not the fibro, but I think from both. I very rarely wear any eye makeup anymore.

October 15, 2015
A MyFibroTeam Member

Tried that. Have an apt in Nov with new rheumy

October 14, 2015
A MyFibroTeam Member

My friend sees a n arthritis doctor for her symptoms.

October 14, 2015

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