Do they just treat us like guinea pigs tho lack of understanding
It's hard to say. I think they may be just as frustrated as us. A Dr.'s job is to make us feel better so they may feel like they are failing us in a way. I'm sure my Dr. prescribes a medication approved for Fibro and expects me to come back in 8 weeks and tell him how much better I feel. (Just like I expect to do) Only this has not been the case and he diagnosed me 2 years ago. I keep going back telling him that I'm still in pain and exhausted all the time. And I'm on 3 different meds now! Pretty soon I'm going to stop even trying the Fibro meds and just tell him I just want a good antidepressant so I don't feel as frustrated, and forget about the pain! In my experience so far, I really do feel that they are trying to help, but we are difficult to treat.
Yes, guinea pigs definitely fits our situation.
Doctors are "practicing" medicine. "Let's try this", "Let's try that". We are all so different, so it is a matter if trail and error.
I wish I could remember to ask for samples because I've tried so many useless medications.
Met with GI specialist today regarding IBS. Here is what he told me. IBS, chronic headache , insomnia, fibromyalgia, ,hyperactive bladder, OCD, personality changes are all classified as Hypersympathetic Syndrome. Syndrome causes increases in adrenaline (cholinergic). IBS=abdominal pain mainly in colon. Prescribed Hyosciamine. A little pill to be taken 1-2 tabs every 4 hours as needed for the cramping, gnawing, grating , "electric" pain in lower abdominal/pelvis. Advises following low FODMAP diet. Eliminate Fructose, Lactose, Fructans, Galactans, and Polyols. Need to reduce amount of foods that can ferment in bowels like fruit juices, certain fruits, fructose, honey, lactose like milk from animals, soft cheeses like ricotta, cottage, mascarpone. Galactans like baked beans, chickpeas, kidney beans, lentils. Polyols like apples, apricots, blackberry, nectarines, plums, prune, watermelon, bell pepper, mushroom, sweet corn and all sweetners that end in -ol like sorbitol, mannitol , xylitol.
Avoid stimulating antidepressants like Zoloft and instead use relaxing (anti cholinergic) antidepressants like and cymbalta.
Stop trying to diagnos ourselves. For medical information go to :
This is a non commercial site. I explained to him that we go to other sites trying to get information because physicians don't give us enough information. We look for alternative medicines in desperation to stop pain and get advice from support groups because we see specialist only 15 minutes at a time every 2-3 months. He said in regards to supplements St John's Wort is only one valid for mood enhancer. SAM-e not proven effective for mood booster. He said "fibro fog " should be called loss of concentration.
After 2 months of loosing work time and floundering around trying to get answers from physicians I finally found one doctor that I feel has a clue to my treatment plan. I will see rheumatologist in a few days. Will post what he says. Hope this helps.