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Is This A Progressive Disease?
A MyFibroTeam Member asked a question 💭

I have read many conflicting things and am still confused as to if this is a progressive disease?

posted September 7, 2015
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A MyFibroTeam Member

Actually, the approved meds for Fibro work on the nervous system and pain receptor, not actual injuries to bone or muscle so they should have some benefit if their theory about Fibro is correct. That being said, I have officially tried them all and find they have little to no effect at all (except on sleep).

posted September 7, 2015
A MyFibroTeam Member

I am so glad the all natural route is working for you. I myself did that and it didnt improve anything. There are some people that do respond well to the medication and it helps them. My doctor also said it cannot be classified as a neuro disease because they dont see that change the three neurologist i went to all said they dont treat fibro because it is not neurological. I just think the medical fiels finds this disease hard because each person with it is like a snow flake all different

posted September 7, 2015
A MyFibroTeam Member

All I can say, from my own personal experience is YES it's progressive. It seems like it started out with one thing, leading to another. And yet more. Was subtle and now it's full force. I hope I doesn't progress worse than where I am at now.

posted September 7, 2015
A MyFibroTeam Member

My onset was when I was 4 years old. Adults, including many doctors thought I was just seeking for their attentions - level of the pains, frequency and durations had increased little by little, to the point where I couldn't even move. It's been a little better since my family finally realized my struggle was real, but I know I won't be other people's "normal" ever.

posted September 7, 2015
A MyFibroTeam Member

Meds make it worse for me and add symptoms that resemble the fibromyalgia symptoms. So i took myself off meds and went all natural. I feel better than with any med. Fibro is a nuero disease. It is in your brain that sends out undue amts of pain receptors. The meds that are out there only work if there is a known bone muscle or joint problem. Fibro cannot be detected so why would any of these meds work?

posted September 7, 2015

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