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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Quapaw, OK

Is loss of feeling in hands normal to fibro? Ill grab a hot pan and not realize it, cant judge temp of babys bathwater etc i had an emg in 2013 but dr said there was nothing wrong with me

May 23, 2015
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Answer Summary

Members confirmed that loss of feeling in hands is a common fibromyalgia experience, with many sharing stories of burned fingers from hot... Read more

Members confirmed that loss of feeling in hands is a common fibromyalgia experience, with many sharing stories of burned fingers from hot pans, dropped items, and difficulty judging temperatures safely. Several members found relief through medications like Gabapentin, Mirapex, or Baclofen for related symptoms including restless leg syndrome and numbness, while others adapted by learning to work around their reduced sensation and using practical solutions like lavender oil for burns. A recurring theme was frustration with doctors who struggle to connect overlapping conditions like low thyroid, Raynaud's syndrome, and tremors into a cohesive treatment plan, leaving members to rely on each other's shared experiences and coping strategies.

A MyFibroTeam Member

So, so often I loose feeling in my fingers, toes, hands, feet. I drop things, and I have what my doctors call a "resting tremor". My psychiatrist seems to think relates to my anxiety disorder. I totally disagree with her, and tell her that I shake and drop things 24/7, even when I am calm, cool, and collected. I keep saying it's a Fibro thing, and the more I talk to people like we are, the more sure I am that it's true!

May 25, 2015
A MyFibroTeam Member

you may have essential tremor, it is a neurological condition which has nothing to do with anxiety. You might find that other people in your family have a similar trait. Sometimes if they put a pt on medication that slows their heart it helps. and sometimes alcohol helps too. Look up this condition and approach your doc with this possibility. It is not a fibro thing, but I have it too. I also get blue feet and fingers Reynauds Syndrome, google that, do you have normal or low thyroid function? These things are not fibro specific.

May 26, 2015
A MyFibroTeam Member

Yes I have the blisters to prove it,happens all the time,I am forever dropping things as well,x

May 24, 2015
A MyFibroTeam Member

I have that sometimes But mine get to where I cant stay in bed I have it get up and walk around like I have no control over the movement and tingling. They call mine RLS Restless Leg Syndrome and the give mw Mirapex and for me it has worked wonders.

May 23, 2015
A MyFibroTeam Member

RLS restess leg syndrome has nothing to do with the unusual symtoms fibro folks have with sensation in their hands or feet, rather it is a movement disorder, I wonder how many of these folks actually expierience RLS because they are dependent on opiods and are physiologically jonesing. That is their bodys are craving a higher dose than their docs have them on because they have become tolerant. I am not talking crazy here, According to DR Brian Johnson of Upstate Medical University, an esteemed experert on opioid pharm and detox, your body actually kicks when it is going through the process of opioid withdrawl, and this can happen even while actively receiving some form of narcotic. I was on large doses of narcotics for various conditions, see my bio, I had spasms throughout my body bad enough to make me think I had MS, I had Hyperalgesia diagnosed through putting my arm in ice baths and testing my endurance. My time has gone from21 sec to 3 min, my spasms and RLS are gone. Now the sensory changes in my feet and toes and the colors the turn are a different story, they have found that there are actually increased arteriovenous shunts in the hands of fibro folks. One of my docs was intregued with my palmar rubar years ago although I am not alcoholic, which may occur.

September 14, 2015
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