I feel like my doctors don't hear a word I say after years of pain and insomnia I have become severely sleep deprived. I'm dizzy disoriented nauseous head pounding every morning just getting dressed is a real struggle most days. But yet I've gotten no treatments aside from take an aspirin and stretch. I'm at my worst end trying not to puke on my way to work or fall asleep at the wheel. No one is getting the message.
@A MyFibroTeam Member YES. I recently had to go to a neurologist for something unrelated and in reading my chart he saw the fibromyalgia diagnosis. He told me "Well, we can take care of the parasomnia with Klonopin no problem.... other than that looks like you might have some psychosomatic issues so maybe get some counseling and lose 50 lbs at least and you'll be amazed at how you're suddenly in a lot less pain." Gee. Thanks asshole. I never knew that. Thank you for enlightening me. I knew it couldn't have anything to do with the fact that I've gained a disgusting amount of weight from a combination of the meds they've had me on to deal with this pain and from being basically a useless couch wart and in so much pain I have considered suicide at times. It must just be that I'm lazy and eat a steady diet of fast food and enjoy the way it feels to have two chins and to actually effing feel the fat bouncing around when I hit bumps on the road and such. And the fact that girls used to check me out and be the ones to approach me when I was off being shy, and now IF people look at me they look through me or look disgusted or silently judge me. But yeah man, I'll just go drop that 50 lbs. "at least" ASAP because I can totally do that.
@A MyFibroTeam Member Second to the obvious pain, fatigue, and other sh*y primary symptoms of this disease is what you just brought up: finding a doctor that A: Doesn't treat you like a pill-seeking junkie, B: Actually has the time (and cares enough) to *really* listen to you and, C: Believes in Fibromyalgia.
It's bad enough when your friends and family don't get it because "you don't look sick", but paying to have a doctor treat you like a moron, a junkie, or a hypochondriac that self-diagnosed because of something they read online is TERRIBLE.
And unfortunately the chances are you will have to go through several awful experiences before you find a great doctor that will help you. This is more true the younger and better looking you are (dead serious), but they are out there.
Not everything is weight related. It took me 50- years to figure that out and to find doctors who realize that. I did everything every doctor told me to do over the years include losing 150 lbs. - guess what? My pain just got worse. With the weight loss came a whole new set of issues, including my spinal disc collapsing on top of each other. It is such a tiring prospect trying to find a good doctor and I've been to so many. I am currently looking for a new primary care doctor. I've two excellent one leave the practice I go to and this new one, while she is nice, I have to explain to her every single time why I a prescription. Plus, previously my doctors saw me once a month so they could give me a B+ shot and then all of the prescriptions I need for that month. Now this new one tells me that I should come in every three months and call in between for prescriptions. What she didn't tell me is that I would have to go to the office to pick up the prescriptions - sit for at least an hour to wait for her to print & sign the scripts AND then get charged a co-pay for it - even though I never see her - I sit in the waiting room until her assistant hands me the script. This does not play well in my mind and I'm so done with her and that practice (and her not-very-nice assistant). So, I'm once again searching for a new primary. Big sigh. It's a tiring job, but we do what we do to better our lives. I will not settle for going to a doctor that makes me feel like a drug addict.
I found that the most depressing part of Fibro and all of my other issues is finding the right doctors. Someone told me once that I am the only advocate for my body and I have to go to the ends of the earth to make sure I get it taken care of. So, as frustrating as it may be, I have gone from doctor to doctor until I find one that will stop, look at me, and listen to every word I have to say. Once you find that doctor, you will realize they were worth the search. Don't give up and don't think you are nuts either.
If anyone on this site lives in your city and has had success with a doctor call him/her. But first. find out what the person from this sight did to get a doctor to accept her. .You mention only physical symptom. If you are depressed also by the disorder go to a psychiatrist, even go to a counselor who can recommend a psychiatrist (they all MDs). If you can't sleep, go to a sleep clinic or neurologist. There also could be a pain center run by a doctor. Try other avenues if you can't get through to a primary care doctor.