My wife and I haven’t been on vacation for the last 15 years. How do people with fibromyalgia pain go on vacation? She’s wanting to take a group tour bus trip and I see myself being alone with strangers while she has one good day three bad days and never comes out of a motel room.
I can't imagine going on a bus trip with fibro for my tour guide. My husband & I took road trips. I'd bring along pillows & things that made it more comfortable for me to ride. I'd bring a heat pad… read more
I had really bad face pain since July 1st, it started with right side ear, eye, forehead and head, I got trigger point injections done for that and got some relief. Now 4 days ago I start having severe pins, needles and burning pain in my lower left side of the face, it was unbearable, I saw pain specialist and he gave me Carbamazepine 200 mg and injection in my cheek. I got relief from pain but I am dizzy, woozy, unsteady and super nauseated, very weird feeling.
I am wondering if someone else… read more
I'm not sure what it's called but a masseuse did a masarge in my mouth, gross but really helped with face pain the kind you cry from
Carmazapine helped for a time but it did not mix well with other… read more
I will be traveling from Florida (30') to Colorado (6,900+'). How does a change in elevation effect symptoms??
Thank you! Still packing but definitely bringing a jacket!
We’re planning to move back to Northern California from Louisiana in February. I did the drive here by myself in 2019 but I was not sick as I am. I would appreciate any tips so I’m prepared in advanced.
Same advice as the others but as we have only moved within British Columbia, shorter drives, a 3 day drive, a 2 day drive, a 2 day drive and a 1 day drive. The 2 day drives could be done in 1 day… read more
I went for walk but got really bad burning pain and stiffness in my right leg and couldn’t finish my walk.
Did anyone else had it? Do you know what is it?
I have so many health issues going on and wouldn’t like to go to Dr for this. it’s not getting any better with rest either.
Thank you 🙏
Happened to me that first sent me to the doctor have you figured out if you have a vitamin deficiency or not I had a deficiency in B12 and vitamin D and it's certainly helped once my once my levels… read more
Has anyone tried a autoimmune diet, no gluten, no nuts, no grains, no diary, no eggs, no lentils and no night shade vegetables?
I follow dr esselstyns plant based eating plan . He’s s cardiologist at the Cleveland clinic which is top
In cardiology . I have no heart problems , but his is for total health . His book is How to… read more
I have tried acupuncture, physio, message, painkillers, antidepressants and trigger point injections but so far nothing has yield any positive results, on the other hand my symptoms list is growing every day.
I am trying a low dose of Naltrexone now and wondering if it has helped anyone? It has good reviews.
Did you have any bad side effects such as anxiety or headaches?
@A MyFibroTeam Member Hello....when I start will let you know. Right now I am waiting for a call from the Pain Clinic here in my town. That is one of the medications I will ask about as it does… read more
I'm having a bad flare up at the moment. I was kind of crouching down to cut out some fabric I'd laid out on the floor as I can't kneel anymore. When I stood up the pain in my hips was so bad my balance went and I fell over. That was a few days ago but now my hips are still painful and knees. My hips in my groin area are really swollen and my thighs are too but look lumpy. Does anyone else get this too?
My feet get stuck and so do my hips and back when I've done too much walking. My GP is treating fibro conservatively so I have amitriptyline, cocodamol and tramadol, I use a tens machine and heat pads… read more
I been having a head tremors, right side head, ear and eye pain, I been told by the doctor that it is caused by anxiety. I am also all flared up and lot of different parts of body are aching.
I am trying to figure out how to break this whole cycle: pain, fatigue, forgetfulness, frustration, sadness, anxiety.
Does anyone else feel like that you are on hamster wheel? Don’t know how to get off this.
Hi Sue and Bobbi thank you for sharing your journey with all of us, it makes me feel that I am not alone. Please don’t feel hopeless, God will help all of us to get through this dark period of our… read more