UK and fibromyalgia | MyFibroTeam

Connect with others who understand.

sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "UK"

reset
Any One On Here From The UK
A MyFibroTeam Member asked a question 💭
A MyFibroTeam Member

I'm from Birmingham uk

Uk,What Are Your Experiences With Self Referring For Home Adaptions Via Your Local Council?tia
A MyFibroTeam Member asked a question 💭
•
View reactions
A MyFibroTeam Member

Thanks ,I'll try that too

Anyone Had Any Look With Claiming Benefits In The UK For Fibromyalgia?
A MyFibroTeam Member asked a question 💭
A MyFibroTeam Member

Hi Sandra I needed some help filling the forms in. I contacted my local citizens advice who then arranged for a call back for me. Here’s the number (Phone number can only be seen by the question and… read more

Has Anyone Tried The Sapphire Clinics In UK?
A MyFibroTeam Member asked a question 💭
•
View reactions
Disability Benefits And Radar Key (UK)
A MyFibroTeam Member asked a question 💭

Does anyone know where to get radar keys from and the process? (Radar keys allow the user to access disabled toilets)

Also does anyone have any advice for claiming disability benefits for fibromyalgia sufferers?

I'm currently based in Crewe, UK

•
View reactions
A MyFibroTeam Member

Hi, i bought my radar key for my daughter from Amazon ( it was about £5 i think ) at the beginning of the year. Also your Local Council should have them for sale quite cheaply. I'm just filling out… read more

Neurologist
A MyFibroTeam Member asked a question 💭

Hi lovelies, does anyone uk based have a round about timescale of how long a neurologist referral takes? Also what will happen at my appointment, letters not even here yet and im already nervous xx

•
View reactions
A MyFibroTeam Member

Dylani im being referred for numbness, tremors and funny balance.

Bluebird, i keep a pain diary for the gp so ill bring that with me. Im hoping i can bring my mum with me by the time my app comes… read more

Fibromyalgia /PIP/ Disability Classification UK
A MyFibroTeam Member asked a question 💭

Hi, Technically this is 2 questions but they are interlinked so I thought I'd ask them together x

I am already on P.I.P because of my Disc Degeneration, but now I've been diagnosed with FM as well, should I try to get my award updated or leave it till my review next year. (I don't want to end up losing what I already have)

Part 2 Has FM been classified yet in the UK as a long term disability? I know it has in America and Northern Ireland but not sure about here.

Thanks for your advice x

•
View reactions
A MyFibroTeam Member

ADP is for people living in Scotland, if you're already claiming PIP in Scotland then you'll be transferred over. PIP is about how your health conditions affect your ability to carry out various… read more

Can Anyone Suggest A Good Cbd (or Other Cannabinoid) Product To Use For Muscle Tension/pain?
A MyFibroTeam Member asked a question 💭
A MyFibroTeam Member

Thank you I will!

Duloxetine Possible A UK Thing
A MyFibroTeam Member asked a question 💭

Has anyone tried this? Was given it on Wednesday to start for pain as its the new fibro medication apparently although my pain isn't fibro related at the moment but as nothing else is working and additive this is the best way forward.

•
View reactions
A MyFibroTeam Member

I wish you good luck in finding the answers.

Lyme Disease
A MyFibroTeam Member asked a question 💭

Has anybody had a lyme disease test, since 2015 I have been steadily going down hill(mind and body) last year more rapidly and now walk with a stick.
Was diagnosed with fibromyalgia end of 2019 although I was convinced I had MS.
I recently had a lyme disease test that came back positive for borrelia, bartonella and babesia... I know alot of you have similar symptoms so it's worth getting checked

•
View reactions
A MyFibroTeam Member

I used arminlabs in Germany. The elisa test you can get done lots of places here in uk