In your best opinion and assessment, how much do you believe that two senior chronically ill persons need to live a reasonable quality of life in the United States of America? This is a serious and complex question if you will. Thanks in advance.
Wow! Thank you for all that interesting history. I will look for the books too! What a great post , Pat.
Diagnosed almost a year ago; was recently taken off meloxycam I was taking in the mornings due to potential for liver toxicity and put on an increased evening dose of gabapentin instead. Was already on Effexor for depression so that's stayed. But ever since the med switch I've been barely making it home from work before collapsing with exhaustion. The problem is in those hours from 4-7pm the dog is desperate to be walked (he refuses any walker but me, go figure), dinner needs to be made, etc… read more
Sleep quality is just as important if not more important than quantity. Try different things for sleep. Ask your Dr if you could have sleep apnea. Prayers. I struggled with work for so many years but… read more
After years I asked my Doctor what she thought about medical Marijuana? Surprisingly she thought that it was a good idea. It’s the only thing that gives me a few hours of escape from my pain, depression and all of my Fibromyalgia companions that don’t allow me to live any resemblance to a life with quality.
I did that for about three years bit then I started to feel paranoid and had to stop.
I'm 19 years old, from Ireland. I cannot work due to pain and fatigue and a million other symptoms! I have no quality of life, no income and feel so alone as I can't live the life of a normal -19 year old!
Does anybody know any jobs that would be suitable for fibro sufferers? I have been waiting 5 months to hear back to see if I can qualify for disability allowance and when I ring they just keep saying it'll be another few months before I hear anything ( that's government in Ireland for you!!)… read more
I think you should go in and see those people you are applying to get a disability. They are putting you off. Go in and explain you are really not good and you cannot work and want to know what is… read more
I would like to hear from anyone in the USA for this question...IF you are living alone on SSI & Medicaid only. What is it like for you, and how do you manage?
Looking forward to hearing reality. Some if us may be facing this.
Stacey
Thank you for your response. It isn't easy, but you are brave and strong. The Word says that when we are weak, He is strong. May He be strong in you and help us all
I have… read more
Hi:
I take neurotin 400mg twice daily, vitamin D, omega 3, lidocaine patches, and use an alfa stem machine on my seriously rough days.
How much suffering is considered inhumane
When does the quality of life become so low that it is not self sustaining? There are many illnesses that are not terminal, they unfortunately go endlessly on and on. Where would you draw your line
Certainly not just for flare-ups or a few really bad spells. Because we all know pain changes and you can pull out of it. However, pain can be so intense, that ten minutes of unbearable pain is like a trip to hell.
If religion was not a consideration,… read more
@A MyFibroTeam Member Oh honey ,thankyou for sharing such a lovely story! Truly precious.
Hugs and love
I know of someone with fibro who was taking Ivermectin during Covid. She suffered really badly with the usual fibro symptoms and often spent days unable to get out of bed.
She noticed that whilst taking the Ivermectin, her quality of life improved drastically to the point that instead of having the occasional GOOD day she now only has the occasional BAD day. She is still taking it and has not looked back since.
My husband's physician believes it is a placebo effect. I know it is used in veterinary to treat parasites. So it was a long shot, but if it works for her then that's great, even if it is the… read more
If there’s plans made, I make a point to go but I’ll rest later. My hubby and I have a busy Summer; I know when to say no to things. I do have to push myself to do things like, stuff around our place… read more