Fibromyalgia Educational Seminar: Michigan Medicine | MyFibroTeam

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Fibromyalgia Educational Seminar: Michigan Medicine
A MyFibroTeam Member asked a question 💭

Hi everyone
Today I wanted to share some of the questions answered by an internationally-respected doctor/researcher of FM.
First of all, has anyone seen this video?
https://www.youtube.com/watch?v=B0EhNajqkdU

After watching the entire video of his seminar, I reached out to him and asked the following questions. While I truly appreciate the time he took to read my long email and answer my questions, still I find his answers unclear. I wanted to see what everyone here thinks. (His answers… read more

posted October 4, 2019
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A MyFibroTeam Member

1. I think he is saying, yes FM and CFS are the same, but they are not in reality. You can have CFS and not have FM. But usually having FM means you are chronically fatigued.
2. I don't bruise, but my friend who has FM does, I guess it is just oversensativeness and other factors.
3. Fibro does coincide with skin itchiness and yes because we are overly sensitive to everything.
4. I too have a horrible time with remembering what I read and focusing on what the task is at hand and have never been diagnosed with Dyslexia. I used to be fine when I would read before my symptoms became horrible. So yes, super fibrofog issue.
5. I tried gluten free and it didn't help me any, I also tried the nightshade free and no luck. I think we are all different when it comes to foods. Some people are more affected than others and it can exacerbate symptoms, but not for me.
6. I take Metformin for PCOS and have found no help with my FM due to it. The other drugs I have never heard of.

Hope this helps.

posted October 4, 2019
A MyFibroTeam Member

Most of what he says makes sense. I have dyslexia and fibromyalgia but I don't think they are connected.
Dyslexia and brain fog are very diffrent. I was diagnosed with dyslexia as a child I have only had fibromyalgia 2 years.
Dyslexia is having to think which is a d and a b ie wanting to put letters the wrong way round. My brain is just as quick to understand as others I just have a different way of getting there. Like reading instructions for putting something together might make no sense but give me a pile of the bits and I will put it together no trouble without instructions. My mind works more on a practical level. I love cars and the way an engine works makes perfect sense to me when I see it working but reading about it makes no sense.
I have ways to get round things. Like using diffrent colour paper/tablet screen to help me read. Don't know why but this helps.
Dyslexia runs in families. My niece has it but she is at university studying to be a teacher.
Brain fog makes my dyslexia worse some days like my spelling has got worse but apart from that no I don't think they are connected.
I know when it's brain fog. That's when I forget a person's name I have known for years or where a village is near my town where I have lived all my life. Or did I already add salt to the sauce? Or what something is called I use all the time or reading the same thing over and over.
Sorry to ramble but hope that helps.
As for the other things I bruise much easier now and my skin is sensitive to things. Like a lable on a dress will annoy me.

posted October 7, 2019
A MyFibroTeam Member

This is great! Thank you for sharing.

posted October 5, 2019
A MyFibroTeam Member

@A MyFibroTeam Member Yes, it helps. Thank you!

posted October 4, 2019

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