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Severe Fibromyalgia

Severe Fibromyalgia

For those of you housebound with this illness, how have you adapted to your new life so that it still has purpose and meaning and fulfilment whilst living in your limitations? (Apart from getting a hobby or finding friends as that is just not working)

A MyFibroTeam Member said:

I've just applied to volunteer for samaritans, I was housebound but getting back, but maybe it's just an idea that you could do some sort of phone support via volunteering? It helps me find some purpose, if not there are mental health sites looking for online support workers that dont need any experience which could be good as long as you're not struggling with brain fog too much and can handle the types of conversations xx

posted over 1 year ago
A MyFibroTeam Member said:

You can also create care packages for the homeless or soldiers. My mother would volunteer through her church to make care packages but she didn't have the time to put them together, so she would pick up the items and drop them at my house and I would create the packages. Once I started getting back on my feet I looked for jobs that were friendly to people with disabilities and was very up front about my capabilities.

posted over 1 year ago
A MyFibroTeam Member said:

I crochet prayer shawl and all blankets for a church missionary group, crochet blankets as gifts and I am currently working at my fibromyalgia and rheumatoid arthritis pace to finish my deceased mother's unfinished embroidery projects

posted over 1 year ago
A MyFibroTeam Member said:

Hello
I've been housebound since 11/2018. I'm blessed to work 35-40 hrs a week from home. Luckily I was virtual when I went down and my supervisor and intermitant FMLA saved my job. Working is a wonderful distraction. I have to lay down during lunch and after work. I'm blessed- my son bought us a house (lost my apt & 2nd job). He is such a blessing. He interacts daily with me and brings me surprises to cheer me up. I manage to do chores in the house with frequent breaks. Still trying to adapt but with work & piddling around the house I have purpose.

posted over 1 year ago
A MyFibroTeam Member said:

I was down for awhile on disability with this illness, after about a month or so I started going to the library. By the time I was approved by the city that I could read childrens books to the kids, I had to go back to work, but it was so nice to go into the library and chat, they have support groups and you can enlist in other activities to be in with society. Once I went back to work, it was all gone of course, here I am now after my surgery thinking by the time im well, they will send me back to work, so its been tough in all areas to create hobbies so to recover. I wish you well and I hope you find something you will be excited about.

posted over 1 year ago
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