I was diagnosed in 2009. I read everything I could get my hands on. It al clicked one day when I was reading about the progression of Fibromyalgia. For instance, I have had headaches and TMJ since I was 17 or18. Other things came along the way. So it all clicked when I looked back on my life and what took place that lead to my Fibro diagnosis. Fibromyalgia has helped me to focus on the good things in life and good experiences. This has… read more
I had an eye opening experience this year while reading the book by Anthony William Medical medium called "Secrets behind medical mystery Illness and How to Heal." I couldn't put it down, because my whole medical path was outlined specifically to the point where I had to believe what was said. It was spot on for me, right down to the calcification of my mitral valve, chronic kidney failure, symptoms of lupus and RA and lymne, which I had been tested repeatedly for over my life but never had a positive test result. All those sx were fibro related brought on by the EBV. He claimed that fibro along with so many other auto immune diseases, is caused by Epstein barre virus. EBV is passed on maternally, or you get the infection usually in your yound adult life. He also has instructions on how to kill the virus with foods and supplements.
A must read for anyone with fibro or autoimmune disorders.
I have had pains since I was about 12 years old, then when I was in my late teens/early twenties I was diagnosed with Interstitial Cystitis and from there, my Fibro went into full gear. I have constant pain (without medications at a level 8) with meds I can get down to a 3 on good days. Bad days I get back to an 8. My body is always spasming and touch hurts, clothes hurt, everything hurts. I try to hide it most days, but my husband and older child know when it is super bad. I used to tell my coworkers, but started a new job and decided against it. I have had this for so long that I learned a lot about it and myself and realized others still don't get it. I even have run into people who don't believe it is real. So yeah, I think I will just keep it private from my work place. If I have a bad day, I will just claim a headache or something that people understand.
Before my fibro symptoms developed I had TMJ. Also BPV. It seems a lot of us have many similarities doesn't it?
@A MyFibroTeam Member I totally agree with you. That is the way for me. Depends who I see. If the no me they understand if they don't. Then I stay away. Has caused me to no who my real friends are. Hugs and Prayers
When people ask men how I am, I have 2 answers. 1. Today’s a good day & 2. I’m okay. Those who know me well know #1 means I am in little pain and able to do things. #2 means today’s a bad day. Please pray. This keeps me from
having to explain things to people who don’t understand