I have been seen by so many doctors in all sorts of specialisation, have done so many scans and blood tests over the last 6 years since first experienced the widespread pain. After attending last year 7 weeks pain management program my pain disappeared for almost a year. Unfortunately 6 weeks ago gradually starting in my back begun to spread all over my body again. I've decided to see my GP who sent me for few more tests and after seeing the results told me that based on his experience I have… read more
I know how you feel. My GP diagnosed me over a year ago and at first I was actually relieved that I knew what it was. Then I started to doubt. Every new symptom would make me think it was something else. I eventually went back to see a nice GP and she sent me to a rheumatologist who was really nice and confirmed that it's fibromyalgia. I went for a year stressing which made me worse. As for not having brain fog I would say it's like everything else for one person it might be the worse part but for others they hardly notice. I think I get it if I'm tired or stressed but I know someone else who has it so bad she worries it could be dementia starting. I get really bad stomach cramps but she hardly ever does. Hope it helps to know others feel the same. I would try to see a rheumatologist to put your mind at rest
Many doctors diagnose fibromyalgia once they have ruled out any other causes of widespread pain through examinations and testing.
I always have pains in my armpits. Like a deep ache. I used to think I had a cyst developing, but I could never find an actual lump or specific source of pain/tenderness.
I also used to find exercise and moving around good for me. Made me feel so much better. But thats changed for me and now I cant tolerate it. But the pain in response to exercise comes hours later.
Change in barometer is a trigger for fibro symptoms. Over the 25 yrs. I've had this, I've 'chased' symptoms with a bzillions tests and doctors. Eventually found out that just about everything I was experiencing was related to fibro. So, I stopped all the tests and doctors and just do what I can to get through 'those' days.
I've had Fibro for 22 years and I have periods when the pain was minimal and then a motorcycle hit my car and it started all over again. Yes you can be diagnosed by blood work and a PET scan, the scan shows inflammation in the brain whereas people without fibro don't have the inflammation. Everybody's symptoms are similar some have some and others have different ones you might have. Many people have the pain in their arm pits, I don't have that pain but it is a symptom of Fibro. You don't have to get the fog, I do have that but my Dr. put me on Adderal for the fatigue and it saved my life and helps me to function. Temperature definitely affects our disease, if it's hot and humid, rainy and cold it affects me and the pain is worse than normally. The best I can offer you is keep connected and treat the symptoms, there's different medications so if one isn't working get off of it and try another. Hope this helps. Big hugs
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