My pain is getting worse and worse by the day. Sometimes I can't walk or even lift a jug of milk. I wake up in tears. Is this normal? Or could it be something else as well as fibromyalgia
I'm using an hot water bottle to try to relieve the pain even a little, the thing is it's now leaving marks on me.
I wish I could wake up one morning and be my old self again.
I've had one really good reprieve many years ago and it was fantastic it lasted about two months, with just the a the smallest amount of pain.
That was now many years ago and since then I've ended up in a wheelchair as the pain and being unable to walk by as become so severe to were I now need help 24/7, I'm extremely lucky to have a fantastic husband and two sons who will do anything they can to help me and make my like easier.
So I've only had one reprieve in 30 odd years.😖
The thing is I try to keep my head up and keep going with the massive help from my family . Do I try to be happy even when all I want to do is curl up in a ball and cry and at times wish to die.
I got so bad my partner had to help me sit up on the sofa. I can barely get out of the bath am in so much pain all of the time. I just resently went for my PIP assessment (people from the UK will know what I am talking about) I got zero points!!!! Nowadays you need to be literally falling apart to get help from anyone
I get like this too, I wake at night crying because in so much pain and my body aches 24/7. I think the new drug the started me on is helping I’m still in pain but not as bad as before. Keep positve and have some nice warm/hot bath with epsom salt(lavender) is what I use and try to relax I know that it is hard.
I know what you mean I've gone from bad to worse. I have to now have consistently someone with me at all times.
The pain that frightened me last that was like an horse kicking me in the sort of middle of my back. It was like a 15inch electric shock that I ended up screaming with the pain as it was so bad.
I just feel like as there is no cure the doctor's don't see the point in seeing me even when my pain changes and becomes worse.