I was just coming to terms with my almost diagnosis of Fibro. Then tonight I got the story from a guy who ended up having Lyme- our symptoms are so similar. He had a negative lyme test and had to go to special lab in California that specializes in lyme to get his diagnosis. I have been told that lyme can go dormant and to test and retest. But how many times should I do that before I just except that maybe it is fibro and not something else. I'm scared it's lyme and damaging to my body (… read more
I went through the whole Lyme thing before Fibro. I had my blood drawn and sent to Igenx, and was on 3 different courses of antibiotics plus a ton of natural stuff for Lyme. I never ended up feeling better, and finally my naturopath who did some digging, decided that nothing was aligning the way it should for Lyme, so we moved away from that path. I have also have several friends who were misdiagnosed with Lyme and treated for it, as i was, which now has caused other issues. I hope you find the answers you are looking for. If anything, I would research the EBV ties to Fibro and chronic illness. Hope this helps!
Janim I' ve heard the IGenex lab is the best place to go. However it looks pricy! And how would one know which test to run??
https://igenex.com/wp-content/uploads/IGenex-Pr...
I saw a Lyme doc in Louisiana who said my bloodwork was indicative of a Lyme infection. But after taking the abx, I felt worse. Almost unbearable. So I instead found ways to change my diet and lifestyle. I read that most people recovering from Lyme did just that, radical lifestyle change. And I must say, I have fibro symptoms only every so often now. And it's usually when something else is suppressing my immune system. Stress especially.
True CC, thanks for the info. I’ll definirely check out their site!
Hope your day is a good one dear!💕
I’ve had those same concerns for a while. Symptoms are very similar. Did have GP run Lyme test and was negative, but still not convinced. Where can you get a more specific testing done?