How Do You Know It's Fibro Not Lyme? | MyFibroTeam

Connect with others who understand.

sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
How Do You Know It's Fibro Not Lyme?
A MyFibroTeam Member asked a question 💭

I was just coming to terms with my almost diagnosis of Fibro. Then tonight I got the story from a guy who ended up having Lyme- our symptoms are so similar. He had a negative lyme test and had to go to special lab in California that specializes in lyme to get his diagnosis. I have been told that lyme can go dormant and to test and retest. But how many times should I do that before I just except that maybe it is fibro and not something else. I'm scared it's lyme and damaging to my body (… read more

posted December 31, 2018 (edited)
•
View reactions
A MyFibroTeam Member

I went through the whole Lyme thing before Fibro. I had my blood drawn and sent to Igenx, and was on 3 different courses of antibiotics plus a ton of natural stuff for Lyme. I never ended up feeling better, and finally my naturopath who did some digging, decided that nothing was aligning the way it should for Lyme, so we moved away from that path. I have also have several friends who were misdiagnosed with Lyme and treated for it, as i was, which now has caused other issues. I hope you find the answers you are looking for. If anything, I would research the EBV ties to Fibro and chronic illness. Hope this helps!

posted January 4, 2019
A MyFibroTeam Member

Janim I' ve heard the IGenex lab is the best place to go. However it looks pricy! And how would one know which test to run??

https://igenex.com/wp-content/uploads/IGenex-Pr...

posted January 3, 2019
A MyFibroTeam Member

I saw a Lyme doc in Louisiana who said my bloodwork was indicative of a Lyme infection. But after taking the abx, I felt worse. Almost unbearable. So I instead found ways to change my diet and lifestyle. I read that most people recovering from Lyme did just that, radical lifestyle change. And I must say, I have fibro symptoms only every so often now. And it's usually when something else is suppressing my immune system. Stress especially.

posted January 1, 2019
A MyFibroTeam Member

True CC, thanks for the info. I’ll definirely check out their site!
Hope your day is a good one dear!💕

posted January 4, 2019
A MyFibroTeam Member

I’ve had those same concerns for a while. Symptoms are very similar. Did have GP run Lyme test and was negative, but still not convinced. Where can you get a more specific testing done?

posted January 3, 2019

Related content

View All
Does Any One Else Also Have Lymes Disease?
A MyFibroTeam Member asked a question 💭
Weird Feeling
A MyFibroTeam Member asked a question 💭
Doctor In Los Angeles
A MyFibroTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of use and Privacy policy.
Already a Member? Log in