Hello all. Long story short, I’ve had numerous bloods, clear spine, neck and Brain mri, clear chest ecg, have been to same rheumatologist twice who says it sounds like Fibro, same neurologist twice who says migrane and BFS and not consistent With anything else. I have every symptom of Fibro (widespread pain, tenderness, muscle aches and twitches ect) but I’m not sure why I can’t accept this is Fibro! It’s made me so anxious about my health-that something is seriously wrong. Do I… read more
It is the hardest thing to accept for sure and many days you will doubt yourself or tell yourself you’ll beat it but there is no cure!! If you get a new symptom, I would say give it a week or two before calling the doctor. I’ll bet 98% of the time it goes away cause it’s just fibro rearing it’s ugly head in a different way!!
The way I explained to myself; Since I hurt everywhere all the time, muscles, bones, twitches, heavy legs, sharp shooting pain anywhere, anxiety, palpitations, digestion issues, acid reflux, weird sensations, vision and balance issues, burning mouth, dizziness, sleeping, issues, bladder issues and the list goes on and had all these symptoms investigated by doctors only to be told one by one that there was nothing found and there is nothing to be fixed; I cannot be sick everywhere from head to toe, the only explanation is fibromialgia. Took years to sort things and symptoms out. So I accept I have fibro however investigate any new symptom. I think with using common sense you can decide if you should keep pushing your doctors for further testing. All depends on your personality, symptoms, age (the older we get the more suspicious we should become with symptoms - I think). Bloating in your 20s or bloating in your 50s could mean a difference of a colonoscopy, or going to a gynecologist, shooting breast pain more likely to warrant a mammogram, MRI and ultrasound in your 40-50s the older you get the more likely unfortunately that there might be something behind the pain or symptom. I hope this helps a little to convey my thoughts. Accept fibro but stay vigilant.
I go through the same thing, I hurt every part of my body everyday. If I walk for more than one hour my entire body hurt, it is crazy, sometimes I honestly think it's more than fibro. The thing that send me nuts is if I start hurting on one side, the same part on the other will start hurting at the same time, is like they are working together. I have been going through this for almost seven years and I think it is getting worse. I don't think anyone understand when I say I am hurting on both sides same place. It is crazy. Anyone feel this same both sides craziness? Happy Holidays to all.
Hi, when my doctor recently diagnosed me with fibro, i also asked the same question; mine was more in line with "is fibro real?" It is a shock, not only to the physical body but to the mind as well. If you have been tested for lupus and lyme disease, and they came back negative, and found that your liver functions are a little high and your rheumatoid arthritis levels are higher than normal, then perhaps it is time to accept it, but don't let it change you! Fibro is something we live with, not something that rules us, or lives for us! Does that make sense? The brain is a very powerful organ, and there is life and death in the tongue, so speak life!!!
Having Fibro is like experiencing a death, so you are in morning. The life you once knew is gone and it takes time to accept, but the sooner you accept it you can move forward and create a new life. This isn't easy, it will be the hardest thing you have ever done. You are your own advocate and you will have to fight to feel better and to be heard and accepted. Have you ever heard of the spoon theory? It's like this....every morning you wake up with ten spoons and depending on how you are feeling you may spend one spoon to take a shower and two spoons to go to work and 1 spoon to make lunch...etc... but on a bad day it will take you 4 spoons to have a shower and 3 to get dressed and 3 to have breakfast so there won't be enough left to go to work. I use this to explain to people, I only have 2 spoons, so I can either go grocery shopping or weed the front lawn, one or the other not both. Or I'll just say I'm out of spoons. This people understand and react better to than saying its the fibro, for some reason people turn off when you say that and think you are some kind of hypochondriac. You just take one day at a time, every day is a new day and may be better than the last.