Okay, I’ll be honest but you won’t like it! Lol. First off, fibro definitely gets worse as time goes on no matter what any doctor says! Your pain and fatigue will get worse! The pain will attack different areas of your body as time goes on and could last from a few hours to a few weeks! The fatigue gets worse because your body is constantly fighting the pain! Fibro fog is so embarrassing when trying to carry on a simple conversation and frustrating that you can’t do the simplest of things like writing a grocery list! Then you have all these stupid symptoms that you wouldn’t even relate to fibro if you didn’t come on here and ask what you think may be the dumbest question! Some of these include burning tongue, aching teeth, sores in or around your mouth, burning feet, tingling of any extremities, bad eyes and probably will need glasses, sensitivity to light and noise, sweating, freezing, Charlie horses, spasms sometimes so bad they will wake you, oh ya definitely no sleep because of pain even though you are exhausted, loss of balance and well, I think you get the drift! I wouldn’t wish it on my worst enemy and be prepared to lose a lot of friends and even family as they get tired of inviting you out but you can’t make it cause you’re in too much pain or too exhausted! Sorry I was honest and you probably think I’m a nutbar or a hypochondriac but I can assure you I’m not!! Good luck and I hope yours takes a long time to progress! Remember, everyone is different and what works for one may not work for everyone else! Do what you need to do for yourself and not just to please others! And the biggest thing, come on this site as much as possible because only we will understand what you’re going through!!

That's awesome that you felt it went better. If you want to ask any questions best to post them on the main page and everyone will see it and you will get more responses xx

Fibro is very isolating and it does show you who your true friends and family are.

This is a rather difficult illness to put into a simple answer. Because it varies from person to person. We all may have some similarity but still we are different. I suggest you read up in it first then you can kind of wrap your head around it. Then you really question us. And we are hear to help and listen, and just chat when you need to. Because it's hard sometimes for people without the illness to understand stand. Take 1 step at a time my sister and don't let the word Fibromyalgia scare you. Peace and Blessings.

I totally agree with your description. Every word. It's a lonely disease to some. Maybe because fibromyalgia is to some, a "all in your head" kind of thinking to them. Anyway, just be prepared for this very frustrating new world, new life this disease is about to bring. I have experienced severe all over body pain. Kinda like if you had the worst high temperature flu. You know, how your body is in all over aches and sensitivity to touch? It's the best way I can describe it. Except, the pain is even more intense. Yikes 😬! Fibromyalgia is different to each individual. I believe. Since some people can still work, and others are not able to leave their house in days. Make sure you stand up for yourself at the Drs. The more you educate yourself, the more you can help the Drs. help you. 🤗 And... others! 😉
I think that has been the most important thing I have done, is educate myself and listening to others that have fibromyalgia. WOW! A lot to learn, and another important thing to do, is educate yourself on the medications that Drs. might perscribe for you now. You will have to be your own advocate and have a strong voice over your care. VERY IMPORTANT! I had a ER Dr. give me a shot of tramadol and it could have killed me because I was taking a medication that wasn't supposed to be mixed. Although, I had listed it on paperwork. So, pay attention. Just because they have a degree and is the Dr. don't make them RIGHT. Read, read, read! 😄 Good luck with everything. 🌸 Ginger..🎀